I had a spleen ultrasound done today. I’ve been having symptoms. They said it measures14.4by14.1by8.1cm. Enlarged. Has anyone had this and what’s the treatment? I have ET since 2013.
The most common treatment (and maybe the most effective) these days is Ruxolitinib (Jakafi) which has great results shrinking the spleen. When used early, it also gives a modest benefit in terms of lifespan. A lecture by Dr. Verstovsek given just 3 weeks ago noted that shrinking the spleen early on delayed more serious complications like weight loss and that it's best used before a patient becomes too anemic. Those who don't benefit from Jakafi after 6 months may be switched to a newer kinase inhibitor fedratinib (Inrebic). Nice that there are choices these days. Best thing anyone with MPN can do is get with a MPN specialist. Good luck!
My spleen is also enlarged. I did look up "Foods Shrink Spleen" along with "Foods Raise Hemoglobin" but have been paying more attention to the hemoglobin so I can function better. Look it up. I'm sure you'll find some interesting things.
My spleen is enlarged as well. I have PMF and began Jakafi almost immediately along with a clinical trial drug. I hope this was helpful.
You may want to consult your doctor and have another bone marrow biopsy. I had ET for little less than 2 years. I became anemic, had night sweats and found my spleen was enlarged. I have since been rediagnosed with Myelofibrosis according to the BMB and my symptoms. Im on the list for a BM transplant with MD Anderson. I had no idea I had transitioned over. I knew it was a possibility but was under the impression this would happen in the later stage pf the disease not 2 years after diagnosis. Im currently taking Jakafi which seems to be helping some. Good luck to you.
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