Well I’m just gonna say it bc they don’t actually have any meds to enhance our qol currently. I make edibles. It takes a chunk outta bone pain. Which is currently in my jaw and typically in my lower half or my hands. It doesn’t stop all the pain unless in my muscles. I’m proud to be a card holder as opiates make me itch or regurgitate

If I’m out of juice, why not take a nap. I’m retired and my family and close friends know it 🙏💕

Paul, I was disabled before the ET diagnosis and have used marijuana for pain for the last three years. I was diagnosed just about two years ago. I only use on days when pain is an 8 or more on the pain scale but it lets me rest and get an hour or so of healing sleep. I use drops or gummies. Because of the opioid scare doctors are reluctant to give pain medication. I have discussed this with all my doctors. I couldn’t find a doctor who would prescribe marijuana as everyone I spoke with said marijuana couldn’t be quantified as to strength or dosage. It’s out there so why can’t they do a legitimate study. To many different plants and strengths I guess. Glad to know I am not out there alone looking for help.

On days that I am experiencing itching and severe pain I try rest, 2 Tylenol.
I hesitate to ask, but has anyone researched medicinal Marijuana? I see no mention of it here..i use it for pain myself ( an indica dominant strain).

For the itching I either take beta alanine granule’s in a glass of water or an advil . Daily I take Zyrtec and Pepcid. . Plus I watch foods that trigger histamines for me ( coffee, tomato’s etc.) also a good walk outside helps .