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About myMPNteam

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About myMPNteam
Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Been Told That Their BMB Showed No Iron Stored In Their Marrow? If So, What Did Your Hematologist Recommend?

Has Anyone Been Told That Their BMB Showed No Iron Stored In Their Marrow? If So, What Did Your Hematologist Recommend?

posted 23 days ago
A myMPNteam Member said:

Hi Melissa3

A diagnosis of a MPN and everything that it brings is challenging. My employer was very understanding when I changed from full time work to 3 days. I use the extra time to rest, schedule appointments or do whatever I feel like.
Knowledge of MPNs helps make more sense of everything I go through.

posted 16 days ago
A myMPNteam Member said:

Thank you so much!!❣️

posted 16 days ago
A myMPNteam Member said:

Melissa3, it is very challenging. For me, I had to realize that my health had to be placed first to keep up with all the appointments and procedures if I was going to get a handle on this and enjoy my soon coming grandchildren. At the recommendation of my lead oncologist/hematologist, I decided it was best to retire from teaching early and stop going to school. My life was already so demanding that I had ignored so many signs. Thankfully my husband pushed me to make this decision and I am now able to rest when needed and be in charge of my body and go to almost all the appointments needed without much help. I made it clear to my family that I want to remain as independent as long as possible. I am able to enjoy or home, pets, and plants as well where as before it was all just too much. I hope this was helpful.😊

posted 17 days ago
A myMPNteam Member said:

How do you organize your life with an MPN Diagnosis? There are so many different doctors appointments and bloodwork etc. any tips thank you

posted 18 days ago
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