A diagnosis of a MPN and everything that it brings is challenging. My employer was very understanding when I changed from full time work to 3 days. I use the extra time to rest, schedule appointments or do whatever I feel like.
Knowledge of MPNs helps make more sense of everything I go through.
Melissa3, it is very challenging. For me, I had to realize that my health had to be placed first to keep up with all the appointments and procedures if I was going to get a handle on this and enjoy my soon coming grandchildren. At the recommendation of my lead oncologist/hematologist, I decided it was best to retire from teaching early and stop going to school. My life was already so demanding that I had ignored so many signs. Thankfully my husband pushed me to make this decision and I am now able to rest when needed and be in charge of my body and go to almost all the appointments needed without much help. I made it clear to my family that I want to remain as independent as long as possible. I am able to enjoy or home, pets, and plants as well where as before it was all just too much. I hope this was helpful.😊
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