Hi Nagla
These 2 you tubes videos of presentations by research doctors helped me a lot recently

Living with an MPN-

https://m.youtube.com/watch?v=KfzHpNi6R3g&f...

Calreticular mutation in MPN

https://m.youtube.com/watch?v=LUDLU72m6hI&f...

Hope they help you too :)

Thanks a lot dear

There are several, so search for MPN. Voices of MPN, MPN Support Group, and since I live in Florida I'm in the Florida MPN Support Group. I send a big hug!

What’s the name of the Facebook group please?

Go to www.voicesofmpn.com for information and other research sources. The group has a support page on Facebook. I have the same recent diagnosis and I'm 75 - had the same reaction you did! Research and see a good doctor.