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I thought I would never drink that much either half of it is just for taking medication/vitamins 3 times daily. My JUG, w/ a straw, is 28oz and to take medication (4 including Hydroxyurea) in the AM… read more
The first one wiped me out. Subsequent phlebotomies were easier. I justade aure to drink a LOT of water the day before.
I have ET jak2 positive. Have been taking HU 2x daily for ovver 2 years. I developed leg ulcers in December, so now the dr started me on Besremi.
Olvatam róla egy pozitiv cikket
Hi Patty
My platelets have been as high as 970 and as low as 490. No symptoms high or low.
All I will say I was very stressed our when they were 970.
Best wishes
Lyn
Hi all,
I have an MPN specialist that I have seen for 3 years and visit twice a year. Recently, my insurance changed as a result of turning 65 and the MPN specialist is not in network. Therefore, I will self pay and see her twice a year. Recently, I made an appointment with a hematologist in network for blood work and for renewing Hydroxyurea script. My question is whether to tell the hematologist that I visit an MPN specialist?
Thank you,
Thank you, I am aware and my husband and I for financial reasons chose Medicare Advantage. I spoke to my MPN specialist about this prior to enrolling and found out what would be charged for each visit… read more
My blood test showed platelets 904,000
The results of a bone marrow biopsy showed that I have myelofibrosis
Genetic test results showed that I was positive for the CARL gene mutation
Yesterday the doctor concluded: MF. (The doctor explained that my platelets were high due to MF)
Excellent resources- I think it does - I have PMF - primary MF but have thrombocytosis.
Hello
My husband has triple negative ET at the moment but still gets very fatigued and when he goes through times he has a virus/cold he becomes abnormally exhausted even more and it takes him more days to recover. I feel an FMLA would help alleviate some stress for him. In case a day off to recover on his worst days happens. Plus he’s having to take off work for blood work follow-ups at least every 3 months now if not sooner. But as we all know this doesn’t account for any specialist were… read more
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