Myeloproliferative Neoplasms Questions and Answers | myMPNteam

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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
957 questions

I'm Looking For Other Patients Of Dr. Perkins At Medical City. I've Been His Patient For PV For About 10 Years And Believe He Is Experience

A myMPNteam Member asked a question 💭

I have a mild case of PV with few symptoms that are treated effectively with Jakafi.

A myMPNteam Member

Minimal symptoms

posted 1 hour ago

What Is The Difference Between Flavix And Aspirin?

A myMPNteam Member asked a question 💭

Today I went for a check-up at the specialist hospital and the doctor changed my medication. Instead of taking Aspirin 81, the doctor gave me Plavix 75.
In Vietnam, the quality of medical care, especially the attitude of doctors, is a very big problem. When I asked the difference between Plavix and Aspirin, the doctor did not answer.
So, if you have ever had your doctor change your medication, please let me know! Thank you very much.

A myMPNteam Member

https://www.medicinenet.com/aspirin_vs_plavix/d...
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10...
I can refer to many articles on the web but I want your real experience
Thanks for reading my… read more

posted 11 hours ago

How Do I Message Someone On My Team?

A myMPNteam Member asked a question 💭

I’m JAK2 Positive So Will I Def Become MPN Positive?

A myMPNteam Member asked a question 💭

I’m seeing my haematologist every 3 months having blood tests. Last week I saw her and had normal blood tests. I’ve been told I probably have a CHIP and they feel I will def develop an MPN.( My neurology thinks it’s unlikely.) Not sure what to think
The regularly requirement for seeing the haemotologist worries me and their concern about me makes me feel they know more about my condition and not telling me. My VAF is very low (0.038) so not sure what to think about this. I’ve had 2 bone… read more

Have They Found A Way To Stop The Itching After A Shower

A myMPNteam Member asked a question 💭

I have had. Polycythemia vera for 19 years. I am 82 this year.

A myMPNteam Member

Thank you for this easy-to-understand explanation!

posted 2 days ago

Why Am I So Dizzy All The Time?

A myMPNteam Member asked a question 💭
A myMPNteam Member

Thank you

posted 4 days ago

Anyone That Has Been Diagnosed With Pre-MF, Can You Tell About The Symptoms You Experienced Leading Up To Your Diagnosis?

A myMPNteam Member asked a question 💭

I am waiting for my BMB results. I’m JAK2 positive. Saw a specialist at UVA. What a different experience UVA has been! I feel so much more confident that I am going to get the best care.

A myMPNteam Member

Awesome!

posted 6 days ago

Anyone Who Gets Occasional AFib Take Anagelide?

A myMPNteam Member asked a question 💭

ET JAK2

A myMPNteam Member

Janice
We live in a senior complex. One resident just developed stage 3 Myelofibrosis from taking Anagrelide for 20+ plus years. I think if you take Hydroxyurea for many years you run the… read more

posted 6 days ago

Anyone Having Headaches And Dizziness Taking 500 Mg Hydroxyurea Every Other Day. I Do Not Feel Great.

A myMPNteam Member asked a question 💭

ET JAK2

A myMPNteam Member

No, just taking 500 mg Hydroxyurea every other day.

posted 6 days ago

Could Recent Charlie Horses In My Calves , Feet , And Headaches Be Related To My ET

A myMPNteam Member asked a question 💭
A myMPNteam Member

I use magnesium as a muscle relaxer as I get restless leg syndrome all over my back and shoulders so bad I can't sit still. I take it every night

posted 5 days ago
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