What Questions Should I Be Asking My Doctor/specialist?

Can We Give Blood Or Plasma?

I’m new here and didn’t find a search option yet. So this may have been asked before.
I have been told that we could not give blood or plasma.
Can we or not donate?
If not….why?
Thank you.

Tony

Do You Prefer Telehealth Or In-person Appointments? Why?

Toe Swelling

Hi, My big toe on my right foot has been swollen, red, and tender for about 6 weeks now. Has anyone experienced this type of symptom?/? Thank you, Annette

Where Do You Get The Latest Information On MPNs From?

Check out the myMPNteam Resource Center if you need a place to start - https://www.mympnteam.com/resources

Difficulty With Diagnosis

I am hoping someone can help. I am 37 years old, and had a bone biopsy a few months ago to see if a vertebral lesion was malignant. It came back negative for a metastasis, but showed myelofibrosis. I was referred to a hem/onc who does not think it's an MPN because of my age. I just did 23 and me DNA testing, and it came back positive for the JAK2 mutation. The hem/onc now wants to do a bone marrow biopsy, but I don't think it's necessary as I have all of the diagnostic criteria for Primary… read more

Who Do You Lean On For Support?

Tired

Good morning, I was diagnosed with ET JAK2 + in November 2021. I am 62 years old. I was started on 1000 mg daily of Hydrea and 81 mg asprin. For the past month I have been extremely tired. I have a telephone appointment with my hematologist in early May. Bloodwork work has not really changed. I have it done monthly now. My platelets are normal now. RBC’s and WBC’s are a little low but this is not new. I am also assuming this is med related.! Any input or this a normal side affect. Just wander if… read more

What's A Difficult Topic Or Conversation To Have With Your Doctor?

What's One Piece Of Advice You'd Give To Someone Who Was Recently Diagnosed?