I do too. Worse after showering. I haven't found much that helps but plenty that makes it worse!

I get up around 630-7 am and immediately have a cup of coffee. My joints ache so I move around a bit to get the kinks out. I watch the news till 8 most mornings but I try to walk 4 miles every other… read more

I am ready to start Hydroxy too, but still on 3 Phlebes a month, but i am too tired to even talk! I have PVJAKS2, count is sky high. I'm so sick of it

That this is a chronic disease that has very few outward symptoms. Most people just don’t understand it.

Thank you so much!!❣️

Nod my head and move on.