I read some articles about following a healthy diet and how it makes things better when living wit MPN’s.
I do love 2 nescafe coffee cups daily, i would love to know if nescafe is healthy or not. If it isn’t healthy, please recommend healthier options
Thanks
Me neither 🤣
I have heard that ridalin and cannabis edibles (not smoking, at this point we don’t need to be inhaling smoke) have helped some people with brain fog and/or fatigue. I have an appt. with my hemo coming up and would like to talk to her about it.
The last time I went to MD Anderson, a little over a month ago, I complained about bone pain. Bone pain is different than muscle pain and nothing over the counter seemed to work at all. I was not interested in narcotics, just a little relief. My doctor told me to try Claritin or the generic version of it. Took about a week but the pain is very much improved, almost gone. I take one every morning. Maybe this help help someone else.
No med is, but it’s the only med with a possible cure.
Can anyone provide, other than price and injection interval, a detailed explanation for Rusfertide vs Besremi re: low risk PV patient, 65 y/o F ..?
Thanks...
Steve
My wife (75) is taking Jakafi 10 mg 2x daily (was taking 15 mg 2x daily for 2 months) now taking for the past 3 weeks, Her Platelets have dropped from 70 to 30 in the past 2 weeks
She is also on Xarelto Tabs 20 mg. Her doctor has not made a decision to stop the Blood Thinners. She just completed her 2nd Blood Transfusion 1/27/23. The first one was 12/20/22. Question... should she stop using the Xarelto and maybe start something like Procuit? Our doctor doesn't seem to explain to us what she… read more
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