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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
1007 questions

What Are Your Top Tips For Dealing With MPNs In The Heat?

A myMPNteam Member asked a question 💭
A myMPNteam Member

I’m so sorry for you, Rhonda, and pray that you heal quickly. Glad there are no fractures, but the pain you feel isn’t any better.

posted 12 hours ago

Which Medication Is Better For ET High Platelet Count ? Hydrea Or Interferon? My Platelet Count Is Over 1.8 Million. I Have The Cal-R Mutati

A myMPNteam Member asked a question 💭

Which Medication Is Better For ET High Platelet Count ? Hydrea Or Interferon? My Platelet Count Is Over 1.8 Million. I Have The Cal-R Mutati

A myMPNteam Member asked a question 💭

Hi All. I Have ET, Diagnosed 2 Yrs Ago. So Far Up Until 3 Weeks Ago No Symptoms. Now I’ve Been Having Intermittent Periods Of Lightheadednes

A myMPNteam Member asked a question 💭
A myMPNteam Member

Thanks for that info Veronica.

posted 3 days ago

Anyone With ET Using Besremi?

A myMPNteam Member asked a question 💭

Anyone Taking Jakafi For ET Symptoms? If So, What Side Effects Have You Experienced?

A myMPNteam Member asked a question 💭

How Long Did You Have Bone Pain After A Bone Marrow Biopsy? I Am At 7 Days And The Area They Went In Is Still Sore To The Touch.

A myMPNteam Member asked a question 💭
A myMPNteam Member

If the skin looks OK and there is no redness, discharge, swelling or inflammation, and if the pain does not feel it is spread in that area, some local pain exactly at the spot where the needle entered… read more

posted July 15

I Have Been Diagnosed With ET. Wondering If Safe To Take A Collagen/peptide Since Reading It Affects Blood Clotting?

A myMPNteam Member asked a question 💭
A myMPNteam Member

Collagen affects blood clotting? I’ve never heard this but would like someone knowledgeable here to clarify.

posted July 18

Insurer Denied COVID Shot-Contacted My Doctor-Feedback?

A myMPNteam Member asked a question 💭

My health care insurer denied my next COVID vaccination because I am under 65 (I'm 63). My last one was in December 2023. With PV I feel I would be immuno-compromised and qualify. I contacted by doctor and let him know that, according to the CDC, if I am under 65 and moderately to severely compromised, I should get an additonal dose of the 23-24 vaccine:
https://www.cdc.gov/coronavirus/2019-ncov/vacci...

Has anyone else run into this? Thoughts?

COVID-19 Vaccination
COVID-19 Vaccination
A myMPNteam Member

Thank you!

posted July 12

Who Has Found A Specialist For Primary Essential Thrombosis With Jak2 Mutation I. Seattle Wa

A myMPNteam Member asked a question 💭
A myMPNteam Member

There is a resource here that lists MPN specialists by state.

posted July 7
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