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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Is Nescafe Safe For Someone With MPN?

Is Nescafe Safe For Someone With MPN?

I read some articles about following a healthy diet and how it makes things better when living wit MPN’s.
I do love 2 nescafe coffee cups daily, i would love to know if nescafe is healthy or not. If it isn’t healthy, please recommend healthier options
Thanks

posted 2 days ago
A myMPNteam Member

Me neither 🤣

posted 2 days ago

How To Manage This Brain Fog?

How To Manage This Brain Fog?

I have heard that ridalin and cannabis edibles (not smoking, at this point we don’t need to be inhaling smoke) have helped some people with brain fog and/or fatigue. I have an appt. with my hemo coming up and would like to talk to her about it.

posted 5 days ago (edited)

Bone Pain? Found A Solution That Works For Me.

Bone Pain? Found A Solution That Works For Me.

The last time I went to MD Anderson, a little over a month ago, I complained about bone pain. Bone pain is different than muscle pain and nothing over the counter seemed to work at all. I was not interested in narcotics, just a little relief. My doctor told me to try Claritin or the generic version of it. Took about a week but the pain is very much improved, almost gone. I take one every morning. Maybe this help help someone else.

posted 5 days ago

Rusfertide Vs Besremi

Rusfertide Vs Besremi

Can anyone provide, other than price and injection interval, a detailed explanation for Rusfertide vs Besremi re: low risk PV patient, 65 y/o F ..?

Thanks...

Steve

posted 5 days ago

Question About Jakafi 10 Mg 2x Daily And Xarelto 20 Mg Tabs And Her Platelets Dropping To 30 From 70 In Just 2 Weeks.

Question About Jakafi 10 Mg 2x Daily And Xarelto 20 Mg Tabs And Her Platelets Dropping To 30 From 70 In Just 2 Weeks.

My wife (75) is taking Jakafi 10 mg 2x daily (was taking 15 mg 2x daily for 2 months) now taking for the past 3 weeks, Her Platelets have dropped from 70 to 30 in the past 2 weeks
She is also on Xarelto Tabs 20 mg. Her doctor has not made a decision to stop the Blood Thinners. She just completed her 2nd Blood Transfusion 1/27/23. The first one was 12/20/22. Question... should she stop using the Xarelto and maybe start something like Procuit? Our doctor doesn't seem to explain to us what she… read more

posted 5 days ago
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