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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

Will ET Ultimately Always Progress To PV.

By A myMPNteam Member 12 answers

Which MPN Symptom Surprised You The Most?

By A myMPNteam Member 43 answers

How Does The Cold Affect Your MPNs?

By A myMPNteam Member 32 answers

Is It True That High Platelets Are Not The Reason For Clotting Risk, But Mutations Are.

By A myMPNteam Member 24 answers
1078 questions

Has Anyone Here Received Any Guidance And/or Used Both Omega 3 And Aspirin When They Have High Platelets?

A myMPNteam Member asked a question 💭
Toronto, ON

I have been taking Omega 3 for my cholesterol which it had a positive impact. However, I'm recently diagnosed and suspect that for my high platelets I will be told to go on baby aspirin (pending an appointment).

A myMPNteam Member

I have been on Omega 3’s for years, began a baby aspirin about 7 years ago when taken off my blood thinner. My hematologist is aware of all supplements I take and has never advised me to discontinue… read more

19 hours ago

This One Is For The Ladies: How Does ET Affect Your Period?

A myMPNteam Member asked a question 💭
Durban, ZA

I have Essential Thrombocythemia, Arthritis and Fibromyalgia.

A myMPNteam Member

It definitely has affected mine. For me this blood flow is affected just the same as other blood flow which is constrained/doesn’t move efficiently. There is also interesting research on high… read more

21 hours ago

In 2018 I Was Diagnosed With A Jak2 Mutation - Now It Is Not There - Any Thoughts On What Happened To It?

A myMPNteam Member asked a question 💭
Celina, TX
A myMPNteam Member

They say exposure to toxins from 20 or more years ago or possibly just age. Way more prevalent to get diagnosed after 60.

2 days ago

Do You Follow A Specific Diet To Help With MPN?

A myMPNteam Member asked a question 💭
San Francisco, CA
A myMPNteam Member

I have ET and have stopped drinking alcohol and eating added sugar three months ago and while my platelets are still high and increasing, my energy levels are much more stable and I have not suffered… read more

4 days ago

Does Anyone Have Suggestions For Good Supplements To Take For ET?

A myMPNteam Member asked a question 💭
Durban, ZA

I have Essential Thrombocythemia, Arthritis and Fibromyalgia.

A myMPNteam Member

In addition to my hematologist, I see a chiropractor/homeopath/holistic health care practitioner, and wish I had found him before my blood clots and ET diagnosis in 2001. He is in his late 80’s… read more

6 days ago (edited)

Does Anyone With ET / JAK 2 + Take N-acetyl Cysteine?

A myMPNteam Member asked a question 💭
A myMPNteam Member

May it be helpful to your condition!

September 23

Does Anyone Know If There's A Link Between HLA B-27 And JAK2? I've Tested Positive For Both.

A myMPNteam Member asked a question 💭
Durban, ZA

I have ET, arthritis and fibromyalgia.

A myMPNteam Member

Thanks a lot! This is very interesting.

September 21

I Have A Jak2/ET Diagnosis From My Bloodwork Done By My Oncologist Is There Any Info To Be Gained By Bone Marrow Biopsy? BMB Advice?

A myMPNteam Member asked a question 💭
Edmond, OK

Blood platelets are not real high (in the 500’s) just take low dose aspirin but blood platelets went up by 50 last lab Everything else okay.
Diagnosis in May of 2024, but had high platelets since 2019.
GP just sent me to oncologist in May of this year
Thank you for any info on Bone marrow Biopsy!

A myMPNteam Member

Ok cancel that😀

2 days ago

Is Presence Of Fibrosis In Bone Marrow Possible With Polycythemia Vera Or Is It Always Indicative Of Myelofibrosis?

A myMPNteam Member asked a question 💭
Princeton, NJ

Specifically, What Are The Differences Between Polycythemia Vera And Myelofibrosis?

A myMPNteam Member asked a question 💭
Princeton, NJ
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