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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Can We Give Blood Or Plasma?

Can We Give Blood Or Plasma?

I’m new here and didn’t find a search option yet. So this may have been asked before.
I have been told that we could not give blood or plasma.
Can we or not donate?
If not….why?
Thank you.

Tony

A myMPNteam Member said:

Thank you.

posted 2 days ago

Do You Prefer Telehealth Or In-person Appointments? Why?

Do You Prefer Telehealth Or In-person Appointments? Why?

A myMPNteam Member said:

I would have monthly blood draws and my oncologist would call me a few days later to talk about results and any questions I may have had. I would request an in person visit every few months and write… read more

posted 5 days ago

Toe Swelling

Toe Swelling

Hi, My big toe on my right foot has been swollen, red, and tender for about 6 weeks now. Has anyone experienced this type of symptom?/? Thank you, Annette

A myMPNteam Member said:

Had the same issue 2 Pediatrics and one female orthopedic foot doctor all missed what the problem was Even my GP missed . I have a new doctor because my GP left The practice is when they discover I… read more

posted 8 days ago

Where Do You Get The Latest Information On MPNs From?

Where Do You Get The Latest Information On MPNs From?

Check out the myMPNteam Resource Center if you need a place to start - https://www.mympnteam.com/resources

A myMPNteam Member said:

From this site. I watch all the videos and follow the discussions then I ask my doctor and get her feedback.

posted 12 days ago

Difficulty With Diagnosis

Difficulty With Diagnosis

I am hoping someone can help. I am 37 years old, and had a bone biopsy a few months ago to see if a vertebral lesion was malignant. It came back negative for a metastasis, but showed myelofibrosis. I was referred to a hem/onc who does not think it's an MPN because of my age. I just did 23 and me DNA testing, and it came back positive for the JAK2 mutation. The hem/onc now wants to do a bone marrow biopsy, but I don't think it's necessary as I have all of the diagnostic criteria for Primary… read more

A myMPNteam Member said:

Age 37 is definitely young for myelofibrosis — average age is usually in the 60’s, but it is possible. Did your original bone marrow biopsy show fibrosis? Also, how are your blood counts and other… read more

posted 11 days ago

Who Do You Lean On For Support?

Who Do You Lean On For Support?

A myMPNteam Member said:

That is wonderful that you have such a strong support system!
Tracy

posted 3 days ago

Tired

Tired

Good morning, I was diagnosed with ET JAK2 + in November 2021. I am 62 years old. I was started on 1000 mg daily of Hydrea and 81 mg asprin. For the past month I have been extremely tired. I have a telephone appointment with my hematologist in early May. Bloodwork work has not really changed. I have it done monthly now. My platelets are normal now. RBC’s and WBC’s are a little low but this is not new. I am also assuming this is med related.! Any input or this a normal side affect. Just wander if… read more

A myMPNteam Member said:

What meds are you on Christman?
Tracy

posted 7 days ago

What's One Piece Of Advice You'd Give To Someone Who Was Recently Diagnosed?

What's One Piece Of Advice You'd Give To Someone Who Was Recently Diagnosed?

A myMPNteam Member said:

1)Educate yourself well about your disease. Research till you truly understand fact from fiction
2)Get set up with a true MPN specialist. Many well meaning Hematologist/Oncologists are not up-to-date… read more

posted 1 day ago
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