Connect with others who understand.

Sign up Log in
Resources
About myMPNteam
Powered By

Questions & Answers

Get practical advice and insights from people who understand

Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Featured Q&A

How Do Beverages With Caffeine Affect Your MPNs?

By A myMPNteam Member 25 answers
View Answers

Does Anyone See A Cardiologist For The Increased Risk Of Stroke And Heart Attack And Stroke In ET? Would That Be A Good Idea?

By A myMPNteam Member 18 answers
View Answers

What Are Your Top Tips For Dealing With MPNs In The Heat?

By A myMPNteam Member 26 answers
View Answers

What’s Your Trick For Enjoying Holiday Treats And Staying On Track? 🎃

By A myMPNteam Member 30 answers
View Answers
1180 questions

What Is The Best Type Of Maggnesium To Take

A myMPNteam Member asked a question 💭
Canton, OH

Does Anyone Else Have Hair Thinning Issue And Rash On Back Of Neck??

A myMPNteam Member asked a question 💭
Alakanuk, AK
A myMPNteam Member

No luck with hair-thickening shampoos. Use cortisone cream for neck.

17 hours ago

Why Do People Rely So Much On Technology, Sure It Has Its Advantages, But "over Reliance" On Them Cause Disinformation, Mistranslation, Etc?

A myMPNteam Member asked a question 💭
Northern Ireland
A myMPNteam Member

Since I was diagnosed in 2021, I have been hoping for technological advances (including use of AI) to get to a cure for MPN’s.

I do think there is potential for too much online surfing and getting… read more

January 5

Does The Pancreas Have Cancer In It?

A myMPNteam Member asked a question 💭
Quincy, CA
A myMPNteam Member

I don't think it does - it is the bone marrow

January 14

What Advice Are You Grateful To Share With Others About MPNs?

A myMPNteam Member asked a question 💭
San Francisco, CA
A myMPNteam Member

In do take daily aspirin I meant to say

10 hours ago

Is Anyone On Permanent Disability Due To Their MPN And All The Horrible Side Effects Of Hydroxyurea?

A myMPNteam Member asked a question 💭
A myMPNteam Member

I looked into it following my diagnosis in 2018 and it seems that of the MPN’s the only one that qualified was MF. Things may have changed since then:/

December 21, 2024

I Just Started Treatment With Hydrea This Week And Have Been Feeling Quite Emotional. Has Anyone Else Experienced This As A Side Effect?

A myMPNteam Member asked a question 💭
Durban, ZA

Diagnosed with Essential Thrombocythemia, Fibromyalgia and Arthritis.

A myMPNteam Member

AnnariVanJaarsveld, I completely understand how you feel, as I went through it too when I started Hydrea treatment. At first, I felt very confused and weak, as if the good days were gone. But I want… read more

December 22, 2024

Significant Change In Eyeglasses' Prescription?

A myMPNteam Member asked a question 💭
Lafayette, CA

Hello everyone:

I had my annual eye exam yesterday, and my eye doctor is quite concerned since my prescription has changed significantly in a year. She is scheduling me for more tests. She knows about my PV diagnosis (diagnosed in April 2024). I am on daily HU 500 mg and low-dose aspirin, which so far are keeping my numbers in check.

I noticed my vision getting blurrier and brought this up as well. I also have cataracts, but she told me they are not bad enough yet to correct.

Has anyone… read more

A myMPNteam Member

Had times where couldn't see when my platelets where high also blood was thick sed rate 101 at that time when eye where playing games

December 16, 2024

What To Do With Terrible Itching? Very Uncomfortable And Most Nights It Keeps Me Up.

A myMPNteam Member asked a question 💭
THOMPSON FLS, MT
A myMPNteam Member

Thank you, I’ll give it a try!

December 30, 2024

Happy Holiday Season Peace To All Of Us

A myMPNteam Member asked a question 💭
Irvine, CA
A myMPNteam Member

Enjoy the Holidays!

December 8, 2024
Continue with Facebook
Continue with Google
Lock Icon Your privacy is our priority. By continuing, you accept our Terms of Use, and our Health Data and Privacy policies.
Already a Member? Log in