diet and nutrition tips for people living with mpns and myeloproliferative neoplasms | myMPNteam

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Top 10 Search Results for "diet and nutrition tips for people living with mpns"

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Have You Heard Lemon Juice Promotes Platelets, Therfore ET Patients Shouldn't Drink It? Are There Any Other Things To Stay Away From?
A myMPNteam Member asked a question 💭
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A myMPNteam Member

Hi Renee,

I have not found studies on this topic. If the warning off lemons refers to vitamin C, I could find studies on the potential protective role of vitamin C in leukaemia and some speculations… read more

Effect Intermitted And Longer Fasting On MPN
A myMPNteam Member asked a question 💭

Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks

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A myMPNteam Member

I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-

‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more

Is Anyone Else Participating In The Study Being Done By Dr. Angela Fleischman Out Of UC Irvine About Nutrition Or Familial MPNs?
A myMPNteam Member asked a question 💭

Dr. Fleischman is looking for families with multiple cases of MPN's and/or an MPN and other cancers. She is hoping to have some family members participate who do not have an MPN - or another type of cancer - and also have family members who have say skin or other cancer but not an MPN. She will send you everything you need to participate. All you have to do to is give the vial to someone doing your next blood draw so you can send them a blood sample in the all postage paid envelope and submit… read more

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A myMPNteam Member

Me, me, me, like the donkey from Shrek

I am immensely impressed with UCI, her medical center

All These Rx’s For Our Issues In Here And My ET Seem To Have Bad Side Effects. Makes Sense As They’re Rx But Still, Some Gotta Be Better.
A myMPNteam Member asked a question 💭

What has least side effects?
I heard Pegasus Interferon but Googled that and it has some bad side effects also.

What about Jakifi? The others?

I’m stressed out as I already have big anxiety about taking meds and Rx.

But I (like all of us) will have to take something at some point.
I’m reading those who wait to treat with Rx generally end up with worsened progressed condition(s).

Seems it’s a game of Russian Rouette whether you take it or not.😰

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A myMPNteam Member

We are in control to choose our poison. I prefer to do my research, shop around, identify experts with whom I agree, and give it a try

You are the boss

My Chiro Who’s Also A Functional Med Dr. And Renowned Worldwide For Both Said That SOP And Stem Cells Together Fix Blood Disorders, MPNs.
A myMPNteam Member asked a question 💭

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more

A myMPNteam Member

Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.

The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more

What's One Piece Of Advice You'd Give To Someone Who Was Recently Diagnosed?
A myMPNteam Member asked a question 💭
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A myMPNteam Member

I would also like to add to this
Advocate for yourself! Educate yourself on your diagnosis so that you can ask the right questions to your doctor
Also tell your doctor everything about how you are… read more

Is Working Out 5 Days A Week Bad For Me Having PV?
A myMPNteam Member asked a question 💭

for the last 2 years I have been working out at the gym 90 minutes for 5 days a week to get fit and now I am. after being diagnosed with PV last month, I have some concerns wheather working out for 5 days a week can be bad for me or not.
I am 42 and feel very energetic and want to be a fitness coach so I am really looking for a science based recommendation about this.
Thank you

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A myMPNteam Member

Hi Immortalist,

I'm 35F with ET
i found out that there is no real limitation to the activities we are doing, beside the the general advices/indication (ie. no contact sports, no skuba diving, etc). … read more

I Have Persistent Nausea And Retching That Happens Regularly. Is Anyone Else Experiencing This Too? Or Is This Related To Another Condition?
A myMPNteam Member asked a question 💭

I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.

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A myMPNteam Member

Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more

Is There A Way, A Test, Blood Test, Etc. To Find Out When We Actually Acquired Our MPN, And/or When It Activated Itself?
A myMPNteam Member asked a question 💭

Many of us myself included have said we noticed changes in our bodies and self and symptoms long before we were actually diagnosed.

This bothers me bc I want and need to know, as do we all.

It’s wrong to go by the date we were diagnosed.

Anyone? Thoughts?🤔

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A myMPNteam Member

Depending on the type of mutation you have, you can sometimes distinguish between inherited and spontaneous, as well as using VAF % between different testings (it is good to repeat the genetic testing… read more

How Many Of You On Here Are Around My Age? 32
A myMPNteam Member asked a question 💭

The drs tell me pv is super rare but that IM rare because I am only 32. I started having a ton of symptoms during the covid shut down..broke out in shingles for the first time, insane pain in my neck, upper back, ankles and knees, migraines every other day, brain fog, extreme fatigue and serious memory issues. So that was 2020 and I JUST FINALLY got a diagnosis this year! Its been a really hard few years getting through countless tests, phlebotomies and finally a bone marrow biopsy trying to get… read more

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A myMPNteam Member

Hello mam
I'm 32 and have myelofibrosis.
I also search for same age patients often to understand the symptoms batter.