🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.
Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.
🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more
Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.
The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more
What has least side effects?
I heard Pegasus Interferon but Googled that and it has some bad side effects also.
What about Jakifi? The others?
I’m stressed out as I already have big anxiety about taking meds and Rx.
But I (like all of us) will have to take something at some point.
I’m reading those who wait to treat with Rx generally end up with worsened progressed condition(s).
Seems it’s a game of Russian Rouette whether you take it or not.😰
We are in control to choose our poison. I prefer to do my research, shop around, identify experts with whom I agree, and give it a try
You are the boss
How often do I see them? I’ve read some ppl just see an MPN Specialist and stop seeing a Hema.
Should I see both? My Hema doesn’t put forth much effort or time it seems, like a lot of Western Med. Dr’s.
I think Patient Power is being our own best, fiercest, tenacious advocate, doing our own research despite what a Dr. may tell us, etc.
I remembered there is an article on this website, so this is the link for this
https://www.mympnteam.com/resources/pain-and-mp...
I found a clear and simple explanation of why we experience bone… read more
I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.
Thank you Tta, this list of symptoms really helps.
Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more
Solidarity 🌷
Exhaustion is a symptom of MPNs, and so is body pain. While stress might accentuate them, when one has an MPN, it is far more likely they are there due to the MPN. There are some good… read more
for the last 2 years I have been working out at the gym 90 minutes for 5 days a week to get fit and now I am. after being diagnosed with PV last month, I have some concerns wheather working out for 5 days a week can be bad for me or not.
I am 42 and feel very energetic and want to be a fitness coach so I am really looking for a science based recommendation about this.
Thank you
Hi Immortalist,
I'm 35F with ET
i found out that there is no real limitation to the activities we are doing, beside the the general advices/indication (ie. no contact sports, no skuba diving, etc).
… read more
I've had many injuries throughout my life and have many aches and pains due to past injuries from playing sports, working or whatever. How the heck do I know if pain is from ET or what.
Tatiana
Your comments resonate with me. After work ups by cardiologist, pulmonologist, various imaging for my heart and lungs, no one can explain my shortness of breath, so I owe it up to the… read more
Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks
I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-
‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more
Many of us myself included have said we noticed changes in our bodies and self and symptoms long before we were actually diagnosed.
This bothers me bc I want and need to know, as do we all.
It’s wrong to go by the date we were diagnosed.
Anyone? Thoughts?🤔
Depending on the type of mutation you have, you can sometimes distinguish between inherited and spontaneous, as well as using VAF % between different testings (it is good to repeat the genetic testing… read more