One Month Ago I Was Diagnosed With PV . Now Taking 1000mg Of Hydroxyurea Daily With A Phlebotomy Every 3 Weeks. | myMPNteam

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One Month Ago I Was Diagnosed With PV . Now Taking 1000mg Of Hydroxyurea Daily With A Phlebotomy Every 3 Weeks.
A myMPNteam Member asked a question 💭

Once I began taking hydroxyurea my tinnitus has increased immensely and I am experiencing a lot of temporal, head and eye pressure discomfort/pain. I was wondering if these are normal side effects of the drug. My ears started ringing 8 years ago but not with the current intensity. I have a meeting with my hematologist this week to discuss my blood work after a month on hydroxyurea. All comments appreciated.

posted May 30, 2021
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A myMPNteam Member

Thanks for the information. I have been on 1000mg hu for 4 months and a phlebotomy every 3 weeks. My hematocrit was .62 when I started and after this weeks bloodwork I am know at .45. I have no itching but my tinnitus hasn’t improved. Now I waiting on my doctor to determine the next step

posted August 26, 2021
A myMPNteam Member

I had tinnitus increase with 1000mg of HU daily. It has subsided since I switched to Jackifi. Itching is all but gone also.

posted August 25, 2021
A myMPNteam Member

I'm on 750 mg daily HU and have not noticed tinnitius. But, I've probably had PV since 2014 (diagnosed in 2018) and my symptoms have changed over time. Hope you can resolve this.

posted August 13, 2021
A myMPNteam Member

I have been on 1000mg HU daily for two weeks and my hematocrit levels are still 61%. I have some tinnitus, noticed itching now too where previously did not experience it, and sharp pain headaches in corner of eye. Also having fortnightly phlebotomy. Hopefully things will normalise when my levels decrease

posted August 26, 2021
A myMPNteam Member

I don't notice tinnitius with hydroxy....
Hope your meeting with the doctor gives you some answers.

posted June 2, 2021

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