vitamin d and mpns benefits and uses and myeloproliferative neoplasms | myMPNteam

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Top 10 Search Results for "vitamin d and mpns benefits and uses"

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I Have Persistent Nausea And Retching That Happens Regularly. Is Anyone Else Experiencing This Too? Or Is This Related To Another Condition?
A myMPNteam Member asked a question 💭

I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.

A myMPNteam Member

Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more

Anyone Else Experiencing Memory Issues? Not Age Related But Connected To This Cancer?
A myMPNteam Member asked a question 💭
A myMPNteam Member

Yes, I definitely have memory issues!! I'm afraid it's from the ET itself or the HU. I feel so self-conscious when I'm talking to someone + I forget a word or 2, or even forget what I'm talking… read more

All These Rx’s For Our Issues In Here And My ET Seem To Have Bad Side Effects. Makes Sense As They’re Rx But Still, Some Gotta Be Better.
A myMPNteam Member asked a question 💭

What has least side effects?
I heard Pegasus Interferon but Googled that and it has some bad side effects also.

What about Jakifi? The others?

I’m stressed out as I already have big anxiety about taking meds and Rx.

But I (like all of us) will have to take something at some point.
I’m reading those who wait to treat with Rx generally end up with worsened progressed condition(s).

Seems it’s a game of Russian Rouette whether you take it or not.😰

A myMPNteam Member

We are in control to choose our poison. I prefer to do my research, shop around, identify experts with whom I agree, and give it a try

You are the boss

Do Vitamins Help For MPNs?
A myMPNteam Member asked a question 💭

I have been taking HU for PV for past 3 yrs. Lately my WBC and platelets have been increasing despite that. Does anyone know if supplementing with Vitamin D or C can help?

A myMPNteam Member

How high is too high of a Vit D count?

What can happen if it’s too high?

How often should we check our Vit D count if we get blood every 3mo? Like every 6mo check?

I Took A High-B12 Multivitamin For A Week And When I Tested My Blood, My Platelet Count Increased Dramatically. I Have ET. What Can I Do?
A myMPNteam Member asked a question 💭
A myMPNteam Member

I have been taking a Super B complex for probably 10 years, also a women's multi vitamin the past couple of years, with my doctors knowledge and no restrictions.

My platelets have been stable for… read more

Effect Intermitted And Longer Fasting On MPN
A myMPNteam Member asked a question 💭

Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks

A myMPNteam Member

I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-

‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more

Besides Having Experience With Blood Disorders How Will A MPN Specialist Help Me? Will They Also Know The Correct Diet, Supplements?
A myMPNteam Member asked a question 💭

How often do I see them? I’ve read some ppl just see an MPN Specialist and stop seeing a Hema.

Should I see both? My Hema doesn’t put forth much effort or time it seems, like a lot of Western Med. Dr’s.

A myMPNteam Member

I think Patient Power is being our own best, fiercest, tenacious advocate, doing our own research despite what a Dr. may tell us, etc.

Pros And Cons Of Doing The IV Thing That Removes Platelets. How Does This Work? How Often? How Long Does It Take Each Time? Does It Hurt?
A myMPNteam Member asked a question 💭

My Hema said I could do it in their office. I’ve heard it can cause iron deficiency, anemia, loss of nutrients.

But it’s gotta be less toxic than an Rx, right? Seems all options have pros and cons? Some better and worse than others.
Thought this could be a good place to start for if and when I’m told baby aspirin isn’t enough.

New to all this mess and just started baby aspirin Jan. 31 but don’t even want to be on that.
🤷🏻‍♀️

A myMPNteam Member

Forgot to include the 20 year longevity study. The Anagrelide < HU study was separate from the phleb + aspirin < HU < interferon study.

My Chiro Who’s Also A Functional Med Dr. And Renowned Worldwide For Both Said That SOP And Stem Cells Together Fix Blood Disorders, MPNs.
A myMPNteam Member asked a question 💭

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more

A myMPNteam Member

Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.

The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more

Does Anyone Get Phlebotomy As Their Only Treatment. Also Does Anyone Have Issues With Instant Recall For New Laws And Procedures, For Work?
A myMPNteam Member asked a question 💭

I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.

A myMPNteam Member

Thank you Tta, this list of symptoms really helps.