primary myelofibrosis causes symptoms and treatments and myeloproliferative neoplasms | myMPNteam
Sorry, that question could not be found.  

Connect with others who understand.

sign up Log in
Resources
About myMPNteam
Powered By
Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Top 10 search results for "primary myelofibrosis causes symptoms and treatments" in Q&A. To see all results and access other features, sign up for free.

Has Everyone Who's Been Diagnose With An MPN Had A Bone Marrow Biopsy Done?
A myMPNteam Member asked a question 💭

Is a baseline bone marrow biopsy standard in the diagnosing of a MPN or for monitoring it?

•
View reactions
A myMPNteam Member

Dear Cindy2,

A bone marrow biopsy is a standard for diagnosing essential thrombocythemia and primary myelofibrosis, and even for polycythemia vera
A responsible hematologist will never put a… read more

I Am ET,MF The Test Results Showed That I Have A Mutated CARL Gene. Is There Anyone Like Me Who Is Being Treated?
A myMPNteam Member asked a question 💭

Currently I am being treated with low dose Aspirin. Other than that, there is no medication at all. If anyone has the same condition as me and is being treated, please give me more information. Thank you very much

•
View reactions
A myMPNteam Member

Hello BichDiem
I'm glad you're here and getting good information from Steve and others on this site. I'm also glad to here that you have an appointment this month to learn more from an expert
To… read more

I Read A Lot About Primary Myelofibrosis But Very Little About Secondary Myelofibrosis. What Is The Difference?
A myMPNteam Member asked a question 💭

I have secondary Myelofibrosis. I take Jakafi 10 and Anagrelide.05
Twice a day. My numbers are good.

•
View reactions
6 Signs Your Myelofibrosis May Be Progressing Read Article...
A myMPNteam Member

This definition is from the Cleveland Clinic:

There are two types of myelofibrosis:

Primary myelofibrosis is myelofibrosis that occurs on its own.

Secondary myelofibrosis arises secondary to other… read more

Effects On The Body For Delayed Diagnoses For MPNs/ET
A myMPNteam Member asked a question 💭

I was diagnosed with MPN/ET after being initially diagnosed with Polycythemia Vera with a JAK2 Gene mutation in May 2022
This was left 'undiagnosed' for +/- 10 years
I have blood lab results dating back to January of 2013 when my Platelet counts were:
01/2013 - 701
04/2014 - 620
02/2015 - 588
03/2017 - 716
01/2018 - 725
02/2019 - 744
08/2020 - 796
05/2021 - 833
04/2022 - 783 (this is when it was finally brought into question by my VA doctor)
My questions are;
Does anyone know of any findings… read more

•
View reactions
A myMPNteam Member

Scott
I don't believe that treatment with HU and Jakafi have shown to prevent progression of disease. So delay of treatment may not be as damaging as feared. If your condition was severe, you'd have… read more

How Long Can We Live With Primary Mylofibrosis??
A myMPNteam Member asked a question 💭
•
View reactions
A myMPNteam Member

As long as we are proactive

Bone Marrow Biopsy
A myMPNteam Member asked a question 💭

So when you had your bone marrow biopsy did you read your report and if so did your diagnosis read like the part I circled red. The reason I ask is because one of my doctors said it’s a standard statement.

•
View reactions
A myMPNteam Member

I don't have my full report, but it says "consistent with an MPN, most likely ET". "Normal to slightly hypercellullar BM, megakaryocytes with atypia, in clusters. Mild fibrosis MF1". At the time of my… read more

I Have Persistent Nausea And Retching That Happens Regularly. Is Anyone Else Experiencing This Too? Or Is This Related To Another Condition?
A myMPNteam Member asked a question 💭

I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.

•
View reactions
A myMPNteam Member

Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more

Treatment For Sore Mouth, Tongue, Lips?
A myMPNteam Member asked a question 💭

I Started hydroxyurea in May. A few days in the last few months, I felt my mouth burn… rinsing with baking soda helped and it went away… now 3 months later, my mouth and tongue are quite sore and I need to vaseline my lips frequently…am worried about getting cankers!…the baking soda rinse is barely containing the soreness. Eating Yogourt and soothing food helps, but only temporarily….any treatment ideas?

•
View reactions
A myMPNteam Member

The doctor can give you a prescription mouthwash

I Have ET With JAK2 +9.4%. What Does 9.4% Mean? Does It Give Any Indication Of My Propensity To Platelet Overproduction? And Prognosis?
A myMPNteam Member asked a question 💭
•
View reactions
What Is a JAK2 Mutation? Read Article...
A myMPNteam Member

Thank you, Tatiana!

You are so knowledgeable. I asked my specialist at a recent appointment Whether my percent of mutated alleles that are JAK2 positive Have any correlation to the severity of my… read more

Anyone Else Experiencing Memory Issues? Not Age Related But Connected To This Cancer?
A myMPNteam Member asked a question 💭
•
View reactions
A myMPNteam Member

Yes, I definitely have memory issues!! I'm afraid it's from the ET itself or the HU. I feel so self-conscious when I'm talking to someone + I forget a word or 2, or even forget what I'm talking… read more