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The official information is that there is no cure. I could read about the odd case that went into remission, but that seems to be more the exception than the rule. Several of those cases needed bone… read more
I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.
Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more
Thanks for the info.Im pretty sure my Hemotoligist said the same.
I have PV
Dear Ruth,
I am lucky to have access to information and to be in a community of people with other types of chronic illness who share a lot on information and new research. As they share with me, I… read more
Hi All,
I am a 62 y/o law student. Over the last nine months or so, ever since my polycythemia diagnosis, I have noticed trouble recognizing, remembering, and naming other law students on my campus. These are people I feel I should know. I wonder whether my blood-sludge is decreasing oxygen transport to my brain. I worry that this problem will get worse and affect my capacity for critical analytical thinking.
Online reading has not indicated polycythemia as a reason for such memory trouble… read more
Thank you, Tatiana. Very helpful information! It's good to know I am not alone here. I will follow your research links.
I have been experiencing it for about two years. Now that I am under treatment, should I expect the gout to go away if my numbers are reduced to normal levels?
Has anyone found alternate treatments to reduce gout attacks? I am already taking Allopurinol.
Robert, could you please update your data? My doctor prescribed for use Hydrea together with Allopurinol from begining even my urea accid was in norme 220, just to avoid increase when I start taking… read more
Yes, I definitely have memory issues!! I'm afraid it's from the ET itself or the HU. I feel so self-conscious when I'm talking to someone + I forget a word or 2, or even forget what I'm talking… read more
My skin is itchy after a shower but now I am having episodes through the day for no reason. Does anyone know a solution I am going crazy
A pinch or 2 of Beta Alanine in my coffee or tea or any kind of liquid in the morning everyday. Too much of it and it also causes a kind of a tingling itch. Over time, you can add a little bit more… read more
