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I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.
Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more
Yes, I definitely have memory issues!! I'm afraid it's from the ET itself or the HU. I feel so self-conscious when I'm talking to someone + I forget a word or 2, or even forget what I'm talking… read more
I have ET and my mom had Mylodysplastic. I’m thinking about my children’s future
My mother’s brother died of leukemia and one of her sisters has leukemia. I think they both were CLL
Mum is one of 12 kids. My uncle died 15 years ago. My aunty said she had chemo treatment about 7… read more
I noticed that both my hematologists avoid to use the word cancer when talking to me. When I got the diagnosis, the hematologist downplayed ET so much, despite the fact that I was in fever, pain and had so much brain fog I had to take a nap during the appointment. All these are ET symptoms, but apparently not for my doctor. So I was fine in his eyes. Being young was the reason
This was very detrimental as my partner thought and still thinks that ET is a bit like a headache, nothing scary, and… read more
Hi, Genette. I've gained about 13 lbs. However, I will not go off of Jakafi, as it keeps me going one day at a time.
As far as one can read, it cannot. MPNs (ET, PV, MF, unspecified) do not behave like solid tumour cancers that can metastasise to other organs
MPNs might be secondary to other cancers, mostly as the… read more
Thank you again
My father had Mylodysplastic Syndrome (MDS). Is this considered a MPN?He died from leukemia in the end. He was diagnosed 10 months prior.
I and several other people on here have MDS and MPN and JAK2 mutation as well as other mutations. Leukemia is what we’ve been trying to avoid with treatment. Some have less or more of a propensity to… read more
Thank you for the clarification. My Hematologist is not responding to my e-mails. I have to call her office tomorrow to follow up. I don’t understand why they can’t just respond. Usually they respond… read more
Has anyone looked into the class action lawsuits that are currently happening around the country regarding the use of the chemical herbicide Round-Up? There is supposedly a connection between use of that product and various forms lymphoma/leukemia and other blood cancers. Since MPNs are considered blood cancers, I was wondering if this lawsuit also included people with ET, PV, etc. & if anyone has talked to an attorney about this.
It really sounds suspicious that it did, doesn’t it! You would be getting nowhere in trying to get your doctors to help you. In fact, just to bring it up would cause them to change the subject so… read more
He was proactive at least
ran extra blood tests, did a blood test to check blood thickness, a chest CT scan to look for clots, a pelvic ultrasoundand to check spleen if enlarged, and a transvaginal ultrasound bc longer heavier shifting periods last 3-5 years.
Chest CT Scan negative, pelvic ultrasound no clots either. I didn’t think there were but felt better doing it bc I have medical anxiety, and anxiety about Rx, meds, even some holistic herbs, etc.
I think period issue, being 44 and also… read more
I go to MDA and they accept my insurance. I just got on Medicare, but they seem to indicate they will pay. You do need to see MPb specialist. The local oncologist/hematologist doesn’t usually have the… read more
