how and why do mpns transform and myeloproliferative neoplasms | myMPNteam

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Top 10 Search Results for "how and why do mpns transform"

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My Chiro Who’s Also A Functional Med Dr. And Renowned Worldwide For Both Said That SOP And Stem Cells Together Fix Blood Disorders, MPNs.
A myMPNteam Member asked a question 💭

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more

A myMPNteam Member

Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.

The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more

Is There A Way, A Test, Blood Test, Etc. To Find Out When We Actually Acquired Our MPN, And/or When It Activated Itself?
A myMPNteam Member asked a question 💭

Many of us myself included have said we noticed changes in our bodies and self and symptoms long before we were actually diagnosed.

This bothers me bc I want and need to know, as do we all.

It’s wrong to go by the date we were diagnosed.

Anyone? Thoughts?🤔

A myMPNteam Member

Depending on the type of mutation you have, you can sometimes distinguish between inherited and spontaneous, as well as using VAF % between different testings (it is good to repeat the genetic testing… read more

Does Anyone Get Phlebotomy As Their Only Treatment. Also Does Anyone Have Issues With Instant Recall For New Laws And Procedures, For Work?
A myMPNteam Member asked a question 💭

I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.

A myMPNteam Member

Thank you Tta, this list of symptoms really helps.

I Have Persistent Nausea And Retching That Happens Regularly. Is Anyone Else Experiencing This Too? Or Is This Related To Another Condition?
A myMPNteam Member asked a question 💭

I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.

A myMPNteam Member

Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more

Difficulty With Diagnosis
A myMPNteam Member asked a question 💭

I am hoping someone can help. I am 37 years old, and had a bone biopsy a few months ago to see if a vertebral lesion was malignant. It came back negative for a metastasis, but showed myelofibrosis. I was referred to a hem/onc who does not think it's an MPN because of my age. I just did 23 and me DNA testing, and it came back positive for the JAK2 mutation. The hem/onc now wants to do a bone marrow biopsy, but I don't think it's necessary as I have all of the diagnostic criteria for Primary… read more

A myMPNteam Member

I was told by an MPN specialist that they can see everything they need to from a tube of blood. A biopsy confirms what they suspect from labs. Confirming gives them a better idea of what they're… read more

Does Anyone Know - Can The Bone Marrow Cancer Move Into Breast Tissue?
A myMPNteam Member asked a question 💭
A myMPNteam Member

As far as one can read, it cannot. MPNs (ET, PV, MF, unspecified) do not behave like solid tumour cancers that can metastasise to other organs
MPNs might be secondary to other cancers, mostly as the… read more

Effect Intermitted And Longer Fasting On MPN
A myMPNteam Member asked a question 💭

Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks

A myMPNteam Member

I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-

‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more

When Do You Know It Is Time To Up Treatment From Daily Asprin To Hydrea Or Other Treatment Options?
A myMPNteam Member asked a question 💭

Diagnosed ET, JAK2, PLT966 WBC11.6, hematocrit 44.9. These are all trending up each lab.

I am 44 and considered low risk as i have never had a stroke but i do have symptoms including mild pain in left side, some tingling in my arms and feet on occasion, headaches, occasional blurred vision more than usual, night sweats, tinnutis, fatigue and very mild fibrosis in the bones. I wonder if my ET is becoming PV too with my numbers.

A myMPNteam Member

If you don’t have a MPN specialist, I would try to find one. They are the experts on MPN and they wouldn’t be able to tell you if you are progressing to PV

Iwith You On This Bone Pain, How Do You Differentiate If It's From Past Injuries, Arthritis Or Whatever.
A myMPNteam Member asked a question 💭

I've had many injuries throughout my life and have many aches and pains due to past injuries from playing sports, working or whatever. How the heck do I know if pain is from ET or what.

A myMPNteam Member

Tatiana
Your comments resonate with me. After work ups by cardiologist, pulmonologist, various imaging for my heart and lungs, no one can explain my shortness of breath, so I owe it up to the… read more

Anyone Else Experiencing Memory Issues? Not Age Related But Connected To This Cancer?
A myMPNteam Member asked a question 💭
A myMPNteam Member

Yes, I definitely have memory issues!! I'm afraid it's from the ET itself or the HU. I feel so self-conscious when I'm talking to someone + I forget a word or 2, or even forget what I'm talking… read more