covid 19 vaccine boosters and additional doses for people with mpns current guidelines and myeloproliferative neoplasms | myMPNteam

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Top 10 Search Results for "covid 19 vaccine boosters and additional doses for people with mpns current guidelines"

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Are Others With Well-managed ET Considering Getting A Covid Booster Shot This Fall?
A myMPNteam Member asked a question 💭

I had two Pfizer vaccine shots in the spring of 2021, a booster in Nov. of 2021 - and then actually had a very mild case of Covid this past summer (2022). I get a flu shot every fall and I’m in general good health so am not sure I need another Covid booster at this point. So I’m curious what others are doing.

A myMPNteam Member

Nope never had the first one as was still trying ti determine what was wrong . Then the clots started on people with shots already had clots
I'm like 7up never had it never will its gene therapy not… read more

My Chiro Who’s Also A Functional Med Dr. And Renowned Worldwide For Both Said That SOP And Stem Cells Together Fix Blood Disorders, MPNs.
A myMPNteam Member asked a question 💭

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more

A myMPNteam Member

Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.

The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more

Third Dose Covid Vaccine
A myMPNteam Member asked a question 💭

Has anyone who is on Hydrea been advised to get a third full dose as opposed to booster of the covid vaccine? My hemotologist advised a third dose since I take Hydrea,but my pharmacist said the CDC is not considering Hydrea an immunosuppressive drug and thus a booster is all I need

A myMPNteam Member

I've just been to an MPN specialist who told me the Moderna booster is all I need. So far I've been told by a hematologist to get third full dose, CVS pharmacist said booster and MPN specialist said… read more

I Have ET And I Repeatly Get Shingles I Have Had The Shingrex Vaccine But Still Getting Them Has Anyone Else Experienced This
A myMPNteam Member asked a question 💭
A myMPNteam Member

Dear Kathyryn,

Shingles being the reactivation of varicella-zoster virus (VZV), the same virus that causes chickenpox, it is usually linked to our immune system being a bit dysfunctional. MPNs can be… read more

My Husband Has Jak2 ET.COVID Question
A myMPNteam Member asked a question 💭

My husband has Jak2 ET. He’s currently sick w/COVID for 2nd time in a month. Took Paxlovid and symptoms got better. Now sick and positive again. Is ET considered an immunocompromised disorder? Seems regular docs don’t know a lot about ET.

A myMPNteam Member

Dear Debra,

Some doctors tend to minimise risks and use absolute terms. In absolute terms, someone with ET only and without treatment might not fit the bill of being immunocompromised if by… read more

LDH Levels
A myMPNteam Member asked a question 💭

Went to oncologist appt today. Platelets have lowered to 751. Dr. prescribed hydroxyurea 3 times weekly. Concerned with my LDH level that has risen to 449. Has anyone else LDH level been a concern or even discussed?

A myMPNteam Member

Alcapella - Has your LDH gone down? As I said earlier I had been at 1,450 and stayed high for quite a while. After taking Jakafi for a while it lowered at one point to under 700 - it has been in a… read more

Doc Want To Switch Me From Pegasys To Inf-alpha...any Experience Here?
A myMPNteam Member asked a question 💭

I'm on pegasys 135 since December and after an initial drop, my counts are back to their initial levels
Despite my mpn consultant, which is abroad, told my hemae to just wait at leat 6 months to see how it goes, my docs here (I live in a different country) are rushing to conclude the treatment is not effective, and don't want to wait as told them
They are thinking to escalate to 180 for the next two months, and if nothing happens, drop it and then they said that based on current research… read more

A myMPNteam Member

I am not sure where "here" is, but it is a universal truth that assertive patients receive higher quality care. Passive patients do not. This is true everywhere. We have to be educated about our… read more

Pros And Cons Of Doing The IV Thing That Removes Platelets. How Does This Work? How Often? How Long Does It Take Each Time? Does It Hurt?
A myMPNteam Member asked a question 💭

My Hema said I could do it in their office. I’ve heard it can cause iron deficiency, anemia, loss of nutrients.

But it’s gotta be less toxic than an Rx, right? Seems all options have pros and cons? Some better and worse than others.
Thought this could be a good place to start for if and when I’m told baby aspirin isn’t enough.

New to all this mess and just started baby aspirin Jan. 31 but don’t even want to be on that.
🤷🏻‍♀️

A myMPNteam Member

Forgot to include the 20 year longevity study. The Anagrelide < HU study was separate from the phleb + aspirin < HU < interferon study.

Covid Booster Vs Full Shot
A myMPNteam Member asked a question 💭

I have PV and am on Hydrea. My hematologist has recommended a third full dose of Moderna since Hydreain his words is an immunosuppressant. An MPN specialist however just told me all that is needed is a booster of Moderna. Have any of you gotten this differing of opinions?

A myMPNteam Member

👍

Effect Intermitted And Longer Fasting On MPN
A myMPNteam Member asked a question 💭

Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks

A myMPNteam Member

I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-

‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more