paraneoplastic syndromes and mpns and myeloproliferative neoplasms | myMPNteam

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Top 10 Search Results for "paraneoplastic syndromes and mpns"

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I Have Persistent Nausea And Retching That Happens Regularly. Is Anyone Else Experiencing This Too? Or Is This Related To Another Condition?
A myMPNteam Member asked a question 💭

I found out I have hypothyroidism, I had a hysterectomy in November. It is not as bad as last year, but continues to happen. Was hoping someone can provide some guideance.

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A myMPNteam Member

Regarding thyroid: I've been treated for Hashimoto's thyroiditis for 40 years. 100 mcg of Synthroid has kept my thyroid level normal, ever since the correct dosage was found. Also: Does… read more

My Chiro Who’s Also A Functional Med Dr. And Renowned Worldwide For Both Said That SOP And Stem Cells Together Fix Blood Disorders, MPNs.
A myMPNteam Member asked a question 💭

🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.

Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.

🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more

A myMPNteam Member

Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.

The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more

Does Anyone Get Phlebotomy As Their Only Treatment. Also Does Anyone Have Issues With Instant Recall For New Laws And Procedures, For Work?
A myMPNteam Member asked a question 💭

I have PV JAK 2 positive. My numbers have not gotten too high. I get pins and needles itching and and I’m tired. At work I have issues with instant recall of new laws and procedures.

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A myMPNteam Member

Thank you Tta, this list of symptoms really helps.

Anyone Else Experiencing Memory Issues? Not Age Related But Connected To This Cancer?
A myMPNteam Member asked a question 💭
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A myMPNteam Member

Yes, I definitely have memory issues!! I'm afraid it's from the ET itself or the HU. I feel so self-conscious when I'm talking to someone + I forget a word or 2, or even forget what I'm talking… read more

Is There A Way, A Test, Blood Test, Etc. To Find Out When We Actually Acquired Our MPN, And/or When It Activated Itself?
A myMPNteam Member asked a question 💭

Many of us myself included have said we noticed changes in our bodies and self and symptoms long before we were actually diagnosed.

This bothers me bc I want and need to know, as do we all.

It’s wrong to go by the date we were diagnosed.

Anyone? Thoughts?🤔

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A myMPNteam Member

Depending on the type of mutation you have, you can sometimes distinguish between inherited and spontaneous, as well as using VAF % between different testings (it is good to repeat the genetic testing… read more

Anyone With Anti-phospholipid Syndrome And MPN?
A myMPNteam Member asked a question 💭

Anyone get silent migraines then develop anti-phospholipid syndrome?

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A myMPNteam Member

Hi, I presume that I remain positive x 3. Take warfarin and baby asa with Jakafi. Only infrequent silent migraines now. Sounds like you’re ok… hope so .

Effect Intermitted And Longer Fasting On MPN
A myMPNteam Member asked a question 💭

Is there any info about IF and 2/3 days fasting (only tea). NL doesn’t have any info about this. I have to start with med, but want to maybe postpone this.. try to create the best bloodwork possible..Is this possible via fasting! I know about the Mediterranean dieet. Pleas can you make me happy with an advise? Thanks

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A myMPNteam Member

I use beetroot in my juices plus I really enjoy beetroot
Here is what is written in an article I am reading about beetroot-

‘Beets are high in antioxidants. Like carrots, they’re also rich
in… read more

Is It A Symptom Or Stress?
A myMPNteam Member asked a question 💭

Hello all, let's starts by saying how grateful I am for this group. I enjoy knowing I can go here and ask questions with overwhelming and writing my own family. You all are my MPN family.🥰 So I am 47 and I am a teacher, and the teachers Union President and the head of the World language department and a mom of 2 and I'm getting older. So everyone understands that by itself is stressful. My question is, how do I know if what I'm experiencing is a new symptom or just life, I'm guessing I go with… read more

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A myMPNteam Member

Dead Janice,

Type A personality that you describe (energetic, high-functioning people) is a myth that does not hold up in scientific research. It was a myth used in the past to blame illness on the… read more

Anyone With Familial MPN? My 27 Y/o Was Just Diagnosed With ET Nearly One Year After Me, 52 Y/o.
A myMPNteam Member asked a question 💭
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A myMPNteam Member

Here's another source to consider. It's a 2017 scholarly article that discusses familial cases of MPNs (genetic predisposition. The authors say this: “In our experience, about 7% to 8% of patients… read more

I Have Left Shoulder And Arm Pain. Sometimes The Pain Is Worse And Then Subsides A Bit. It’s Like An Ache Or Stiffness. Is This Bone Pain?
A myMPNteam Member asked a question 💭
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Myeloproliferative Neoplasm Symptoms That May Go Unnoticed Read Article...
A myMPNteam Member

I remembered there is an article on this website, so this is the link for this
https://www.mympnteam.com/resources/pain-and-mp...

I found a clear and simple explanation of why we experience bone… read more