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Thank you again
🌟Anyone familiar with this
Says it’s a revolutionary specialized treatment for chronic infections, cancer, blood disorders, vitality, longevity, etc.
Apparently, many ppl do this worldwide for multiple reasons.
Reports say no known reported side effects and safe for all ages.
🌟I’m quoted it’s about $8,000 total, told the stem cells last for your life and they’re from umbilical cord blood with NO DNA from healthy babies and mothers
Said they’re tested to be safe and thankfully non- Covid… read more
Tatiana, I was only sharing my single person experience. I'll add, I was quite sick when I had Covid.
The trial for immunity measured 52 different 'proteins', antibodies related to sars covib2..And… read more
What has least side effects?
I heard Pegasus Interferon but Googled that and it has some bad side effects also.
What about Jakifi? The others?
I’m stressed out as I already have big anxiety about taking meds and Rx.
But I (like all of us) will have to take something at some point.
I’m reading those who wait to treat with Rx generally end up with worsened progressed condition(s).
Seems it’s a game of Russian Rouette whether you take it or not.😰
We are in control to choose our poison. I prefer to do my research, shop around, identify experts with whom I agree, and give it a try
You are the boss
I believe I am biologically 10 years less than my actual age of 63 and even physically younger, so why would the 60 plus rule stand for me. It should vary depending on everyones physical health
Also my dad lived to be 90 and did not really take care of his health like I do, smoker etc. Mom is 87 and just amazingly got diagnosed with ET/JAK617 with low 400's platelets. She's been a health nut all her life and never really had regular check ups until recently. The Dr. didn't try to panic her and… read more
Hi Mark,
We are quite different in our illness and most likely an individualised approach is better. Age is a risk factor, whether we like it or not, but applying it rigidly can result in someone… read more
You never have to start cytoreduction for asymptomatic ET unless you believe it is in your best interests to do so. There is a risk stratification system in place for ET. I believe your profile… read more
We all need fun in our lives. =)
My husband has Jak2 ET. He’s currently sick w/COVID for 2nd time in a month. Took Paxlovid and symptoms got better. Now sick and positive again. Is ET considered an immunocompromised disorder? Seems regular docs don’t know a lot about ET.
Dear Debra,
Some doctors tend to minimise risks and use absolute terms. In absolute terms, someone with ET only and without treatment might not fit the bill of being immunocompromised if by… read more
I am hoping someone can help. I am 37 years old, and had a bone biopsy a few months ago to see if a vertebral lesion was malignant. It came back negative for a metastasis, but showed myelofibrosis. I was referred to a hem/onc who does not think it's an MPN because of my age. I just did 23 and me DNA testing, and it came back positive for the JAK2 mutation. The hem/onc now wants to do a bone marrow biopsy, but I don't think it's necessary as I have all of the diagnostic criteria for Primary… read more
I was told by an MPN specialist that they can see everything they need to from a tube of blood. A biopsy confirms what they suspect from labs. Confirming gives them a better idea of what they're… read more
Hello lovely people 👋🏼
It’s me again ☺️
Is it safe to fly (4 hours flight) with platelets around 500?
If it’s okay, then any precautions or must do’s?
I am on anagrelide and aspirin
TIA
500 is not really that high.
Dear Mark,
It seems like you have familial ET, given that you mentioned your mother was also diagnosed with ET. And you seem to have two somatic mutations
I remembered about this study and maybe it… read more
