Still have itch after 2 years get ur blood levels most days will help some

My oncologist hematologist told me the same story; but was simply a fairy tale for me.

I had phlebotomy every 2 weeks, taking HU twice a day, taking aspirin to which plavix was added; took antihistamines. Nothing worked until I started Jakafi which didn’t take it away but cooled it down so that my hysteria became under control and I felt like I got my life back.

Pruritus has been worse the last month +. My RBCs and hematocrit are within normal range; some of my white cells are elevated and Chet are so chronically even durin periods on no pruritus; my platelets have been coming down since I started Jakafi.

No one has an satisfactory theory.

Hope yours gets better .🙏🏼

Toggling? I’ve read a little about Beta Alanine. Was curious about it.

No sorry it didn't work for me it actually got worse but I have started on Beta Alanine I take a quarter of teaspoon an hour before my shower 🚿 but after taking the Beta Alanine you will get toggling in your fingers for about ten minutes

My itching usually gets worse when its above 45 and then sometimes for a few days after the phlebotomy. I find more so these days that I am particularly sensitive to more foods with high histamine that cause itching.