I have had one bout and was then put on aspirin, hydrea and apixaban. I think I have a couple more clots in my toes, ( they were in my feet last time too).
I think it’s also aggravated by winter and cold weather.
I have MF and just found out yesterday 7/14 that I have a blood clot in my leg, my doctor prescribed elliquis.
I have PV and was on aspirin and phlebotomy once a month. I have experienced superficial blood clots/phlebitis before and after diagnosis. My hematologist did not seem concerned, but they usually caused a sore and inflamed/red vein which took 2-3 weeks to resolve. I had a DVT in June, and I am now on Xarelto. I have some phlebitis since, but they seem to resolve in 2-3 days instead of weeks.
Yes I had a TIA also or something similar, an amaurosis fugax where I lost vision temporarily in my R eye. But that was 6 years before I received my diagnosis of PMF
I have not had blood clots. I was started on aspirin when I was first diagnosed with multiple myeloma. When the MPN was discovered, a little over a year later, hydrea was added. Now I am on Jakafi too. I had a TIA just before this all started so the clot that caused it may have come from the cancer. I don’t know. But my platelets were not high them so maybe not. I’m thankful the TIA wasn’t a full blown stroke!
With MF