Has Anyone Else With PMF Had Blood Clots? | myMPNteam

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Has Anyone Else With PMF Had Blood Clots?
A myMPNteam Member asked a question 💭

I have had one bout and was then put on aspirin, hydrea and apixaban. I think I have a couple more clots in my toes, ( they were in my feet last time too).
I think it’s also aggravated by winter and cold weather.

posted July 15, 2022
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A myMPNteam Member

I have MF and just found out yesterday 7/14 that I have a blood clot in my leg, my doctor prescribed elliquis.

posted July 15, 2022
A myMPNteam Member

I have PV and was on aspirin and phlebotomy once a month. I have experienced superficial blood clots/phlebitis before and after diagnosis. My hematologist did not seem concerned, but they usually caused a sore and inflamed/red vein which took 2-3 weeks to resolve. I had a DVT in June, and I am now on Xarelto. I have some phlebitis since, but they seem to resolve in 2-3 days instead of weeks.

posted October 10, 2022
A myMPNteam Member

Yes I had a TIA also or something similar, an amaurosis fugax where I lost vision temporarily in my R eye. But that was 6 years before I received my diagnosis of PMF

posted July 24, 2022
A myMPNteam Member

I have not had blood clots. I was started on aspirin when I was first diagnosed with multiple myeloma. When the MPN was discovered, a little over a year later, hydrea was added. Now I am on Jakafi too. I had a TIA just before this all started so the clot that caused it may have come from the cancer. I don’t know. But my platelets were not high them so maybe not. I’m thankful the TIA wasn’t a full blown stroke!

posted July 24, 2022
A myMPNteam Member

With MF

posted July 15, 2022

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