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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Else With PMF Had Blood Clots?

A myMPNteam Member asked a question 💭
Australia

I have had one bout and was then put on aspirin, hydrea and apixaban. I think I have a couple more clots in my toes, ( they were in my feet last time too).
I think it’s also aggravated by winter and cold weather.

July 15, 2022
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A myMPNteam Member

I have MF and just found out yesterday 7/14 that I have a blood clot in my leg, my doctor prescribed elliquis.

July 15, 2022
A myMPNteam Member

I have PV and was on aspirin and phlebotomy once a month. I have experienced superficial blood clots/phlebitis before and after diagnosis. My hematologist did not seem concerned, but they usually caused a sore and inflamed/red vein which took 2-3 weeks to resolve. I had a DVT in June, and I am now on Xarelto. I have some phlebitis since, but they seem to resolve in 2-3 days instead of weeks.

October 10, 2022
A myMPNteam Member

Yes I had a TIA also or something similar, an amaurosis fugax where I lost vision temporarily in my R eye. But that was 6 years before I received my diagnosis of PMF

July 24, 2022
A myMPNteam Member

I have not had blood clots. I was started on aspirin when I was first diagnosed with multiple myeloma. When the MPN was discovered, a little over a year later, hydrea was added. Now I am on Jakafi too. I had a TIA just before this all started so the clot that caused it may have come from the cancer. I don’t know. But my platelets were not high them so maybe not. I’m thankful the TIA wasn’t a full blown stroke!

July 24, 2022
A myMPNteam Member

With MF

July 15, 2022

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