I find this rarely comes up. I go to all appointments with a written list of questions and issues that I give the to doctor. I make sure to get through all of the issues for any given appointment. I also make use of the patient portals to resolve many questions and issues. This saves time for both of us.

I have run into what I refer to as 15-Minute Doctors. These doctors run on a tight schedule and do not have time for their patients; therefore, I do not have time for them. To be fair, I do know when I need more time so I make a point to schedule a 30 minute appointment when I know I will need more time. I simply replace any doctor who is not able/willing to give me the time I need.

I do also make it a point to research issues related to MPNs and my other medical issues. I also attend patient and professional trainings and seminars. There are excellent seminars and webinars regarding MPNs. I have found that educated and assertive patients receive higher quality care.

I am very fortunate to have an excellent care team for the MPN and other issues I deal with. They are very responsive and willing to provide the time and information I need to manage my medical care. .I wish the same for all of my MPN kin as they seek to manage their care.