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A myMPNteam Member asked a question ๐Ÿ’ญ
Sacramento, CA

I started monthly phlebotomy for polycythemia just last spring. My physician initially prescribed sessions when my hematocrit is > 52. I argued against such a high hematocrit requirement. So, last month she dropped it to 45%, meaning I can have them whenever my hematocrit is > 45%.

What are your hematocrit boundaries for phlebotomy? Any advice?

October 15, 2022
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Answer Summary

Members discussed the question of appropriate hematocrit levels for phlebotomy in polycythemia, with the overwhelming consensus being that... Read more

Members discussed the question of appropriate hematocrit levels for phlebotomy in polycythemia, with the overwhelming consensus being that target levels should remain at or below 45% for men and 42% for women, based on guidance from MPN specialists at major centers like MD Anderson and Memorial Sloan Kettering. Several members shared that they have phlebotomies as frequently as twice weekly to three times monthly to maintain these targets, with many noting that waiting too long between sessions significantly impacts quality of life through symptoms like brain fog, fatigue, and intense itching. A recurring theme was the importance of staying well-hydrated before procedures, advocating with doctors to lower thresholds when needed, and connecting with specialized care and online communities for support and expert guidance.

A myMPNteam Member

Hi Ben!
I started out at 45 for my threshold. But now it is 42% because waiting until I reached 45% really impacted my quality of life.

October 28, 2022
A myMPNteam Member

I see an MPN specialist at Memorial Sloan Kettering and he said the hematacrit level should be 45 or less for men and 42 or less for women.

October 23, 2022
A myMPNteam Member

I have phlebotomies about every month. The original goal was to draw a unit off if my HCT was 45% or >. However, after seeing an MPN specialist at MD Anderson, he said to try to ALWAYS keep the HCT <45%. So, now, if I go in and my HCT is 43 or 44%, I still have a phlebotomy.

October 19, 2022
A myMPNteam Member

Mine if 45 or higher

October 18, 2022
A myMPNteam Member

Hi Ben ๐Ÿ™‚
From what I have read, hct level goals are usually 45 for men and 42 for women. When I was first dx (Aug. 2020)my hct was 64 and I was having a phlebotomy twice a week until they got my number down to 42(which took about 2 months). I am jak2 positive. I am only on baby aspirin and Claritin for the itching. Have you had a bone marrow biopsy?
Staying hydrated and making sure you eat a little something before hand will help. I do not know if you are on Facebook, but there are several groups geared towards our rare cancer. You can also check out pvreporter.com...they have a list of mpn specialists for every state. Hope this helps.
Take care,

Jen

October 15, 2022

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