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Anyone Out There Getting Treated For PV With Ropeginterferon, (Besremi),

A myMPNteam Member asked a question 💭
Windber, PA

What side effects are you having and how do you mange them?

November 8, 2022
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A myMPNteam Member

Hi I am on Besremi I have had a shot every 15 days been on it for 8 months now.
Side effects not too bad for me just tired the day after the shot sometimes it lasts 2 days feel a bit like a flu or something then it passes 😃 it used to be worse at first maybe it takes a little getting used to.
I used to take a paracetamol just before the shot but currently don’t need it.
All I do is take it easy and rest. Usually have the shot Friday evening so it doesn’t affect work.
Very happy to be on it my niece who is a genetic scientist tells me there is hope for remission with Besremi.
I was on the clinical trial here in Italy and I responded well so now that it has been approved I am back on it for PV & ET 🤗
It did raise my liver enzymes so currently on it every 21 days but I do believe it’s great and lovely not to have to have the phlebotomies and also just knowing it’s keeping all my blood values in check!
Best of luck Jutka 💖

December 11, 2023
A myMPNteam Member

Same Here Side Effects are Tough! Going back to Pegasys.

November 21, 2022
A myMPNteam Member

Thanks Brian Side effects are bad

November 15, 2022

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