Does Anyone Have Schwannomatosis NF3, I Have Had It For Over 50 Years, Just Someone To Swap Symptoms Compare Effects, History Of? | myMPNteam

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Does Anyone Have Schwannomatosis NF3, I Have Had It For Over 50 Years, Just Someone To Swap Symptoms Compare Effects, History Of?
A myMPNteam Member asked a question 💭

Maybe even make breakthroughs in the treatment of this? I have a personal specialist for this condition, it was finally diagnosed in 2017, by a neurologist subsequently now my specialist! I have noticed a few effects, not really listed in accepted lines of Schwannomatosis NF3 symptoms! I also have Juvenile Myoclonic epilepsy, which 'started' the same time as symptoms of NF3, could they be indirectly related? They both started in 1970, when I was aged 14, I am now aged 66, male, and retired!

posted November 19, 2022
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