Talk to your doctor. I am on a clinical trial that blocks iron use by my bone marrow and it corrected the problem.

Bruce3 I don’t know about that but my Dr. Told me that I would have to come in more often for phlebotomy because it would make more red cells. With a iron supplement.

I was told by the Dr that runs the Mylefibrosis program at Duke and directs their trials not to take iron supplements because they can further excite the scar tissue/bone marrow.

The one Oncologist I had kept me anemic to help keep my red blood cells down. I’m on 1000 mags of hydroxyurea a day for PV. I go in the end of January to see a new oncologist mine retired.

Is there any chance that you can cut back on the phlebotomy?

When I took HU, for the 1st 3 months I had phlebotomy every 2 weeks at first and then only if my hemoglobin was 13.8 or higher; below 13.8 no phlebotomy to be rechecked in 2–4 weeks.

I am now taking Jakafi and no longer need phlebotomy. I am not yet anemic although my red counts, hemoglobin and hematocrit are all now in the lower range of normal after 1 year 4 months.

I eat red meat 5 out of 7 meals a week despite popular notion some have encouraging near vegan diets. Fruits and veges are great, and I get my many servings daily; but I don to believe in the notion of denying our omnivore mammalian biology.