Does ANYBODY Know Anything About Schwannomatosis NF3, Have ANY Personal Experiences With The Condition? | myMPNteam

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Does ANYBODY Know Anything About Schwannomatosis NF3, Have ANY Personal Experiences With The Condition?
A myMPNteam Member asked a question 💭

I have had the condition since 1970, finally diagnosed with it in 2017, rather than Neurofibromatosis NF2 which I was wrongly diagnosed in 2006, I have had three surgical removals to remove schwannomas in 1970, 1997 and 2012, I have NEVER met anybody with the condition EVER, or been in contact with someone who had this particular plight?

posted February 18, 2023
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