Connect with others who understand.

  •   Learn from expert-reviewed resources
  •   Real advice from people who’ve been there
  •   People who understand what you’re going through
Sign up Log in
All Resources Treatments A-Z Personal Assistant What is This Site Help Center Crisis
Powered By
Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Has Anyone Lost Hair From The Myeloprolifeative, Or The Meds Hydroxyurea. Thanks For Any Info About It. Judy

A myMPNteam Member asked a question 💭
Hobart, IN
March 1, 2023
 â€¢ 
Reactions

Answer Summary

Members shared varied experiences with hair loss related to myeloproliferative disorders and medications like Hydroxyurea and Jakafi, with... Read more

Members shared varied experiences with hair loss related to myeloproliferative disorders and medications like Hydroxyurea and Jakafi, with some reporting no loss at all, others experiencing mild thinning, and a few losing significant amounts of hair. Several members described practical coping strategies, including adjusting hairstyles with the help of supportive stylists, embracing natural hair color changes like beautiful silver or white tones, and weighing the side effects against the life-saving benefits of treatment. A recurring theme was frustration with doctors who downplayed or dismissed hair loss as a side effect, alongside resilience and gratitude for being alive despite the challenges.

A myMPNteam Member

well i found out it is from the my
chemo medication i am taking named Hydroxyurea 500mg. one time daily . my hair started to fall out got most of it cut off. when she was done my hair is now a beautiful silver. hope all having a good day. judys😊

August 26, 2023
A myMPNteam Member

I've been taking Hydroxy Urea for over 10 years. 2,000 mg a day with no hair loss but my skin has some bad issues. Not sure if that's related or not.

August 26, 2023
A myMPNteam Member

Yes most definitely I'm not sure if it was from the Interferon or the Hydroxy Urea.

July 7, 2023
A myMPNteam Member

My doctors said I shouldn't lose my hair, if so, maybe a small amount and I went from having a head full of healthy nice hair, my head keeps itching and my hair is still falling out and thinned out so bad, I very mad at this doctor, everything I asked about Hydroxy, side effects, his answer was " he didn't think that was a side effect"! I am mad and upset and don't know what to do about the hair loss, will it grow back, what can be done, I stopped the Hydroxy medication on May 26.2023

July 4, 2023
A myMPNteam Member

Yes most definitely

July 1, 2023

Related content

View All

I Am Concerned About Hair Loss On Hydrea. Is This Common?

A myMPNteam Member asked a question 💭
Utica, MI
April 29, 2024

Can Hydroxyurea Cause Thick Tan Line On Big Toenail

A myMPNteam Member asked a question 💭
Brookpark, OH
July 25, 2025

Does Hydroxurea Cause You To Lose Your Hair??? And Does It ACTUALLY Make You Smell Like Urine??? I Read These Things Online.

A myMPNteam Member asked a question 💭
The Dalles, OR
May 17, 2023

Palliative Care: Improving Quality of Life With MPNs at Any Stage
Why Does the Risk for MPNs Rise With Age?
Does Night Shift Work Increase the Risk for Myeloproliferative Neoplasms?
Continue with Facebook
Continue with Google
By joining, you accept our Terms of Use, and acknowledge our collection, sharing, and use of your data in accordance with our Health Data and Privacy policies.
Already a Member? Log in