Hi, I presume that I remain positive x 3. Take warfarin and baby asa with Jakafi. Only infrequent silent migraines now. Sounds like you’re ok… hope so .

I had testing for a clinical trial last month. Follow-up testing found 2 of 3 tests for anti-phospolipid antibodies positive. I am waiting for feedback on results. However, I have had numerous (10+) superficial phlebitis in 4 years and one DVT. So, something must be happening. Apparently, APS has been seen in association with some MPNs. Thanks for highlighting this issues.

Hi, is it Tia or Tta? Am now in my70s, think APL levels still high, not sure. The silent migraines were part of it for me, mostly gone now. History of classic migraines since 30s. All pretty unexpected. Glad to hear you’re improving!

I have ET and had the antiphoshplipid antibodies elevated for some months, but they are back to normal levels now. In my case these antibodies were related to some bouts of autoimmunity to myelin sheath.
I get headaches almost exclusively when I get exhausted. But they can be brutal. I can be in such pain that I cannot speak.