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Okay! I am an exception having the rarest form Schwannomatosis or NF3, having had it since 1970, but right across the medical board, the number of blank expressions of complete ignorance shown by the Medical professions and thus general public, they are recognised medical conditions and they can be BLOODY painful! I could breakdown my own medical experience of my condition, but there are OTHER people with NF1 and NF2 which are equally painful effects! I am tired of the complete ignorance shown… read more

July 15, 2023
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Crestview, FL

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