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Anyone Drink Quinine (tonic Water) To Help Reduce Platelets?
I have ET, Jak2 pos.
Last night I drank some ginger ale to settle my stomach. By bed time I could feel the tingling start to leg cramps due to the carbonation. I wondered if the arnica oil I use on my bad hip could help… read more
Anyone With PV Have Increased Levels Of Immature Granulocytes? Mine Have Creeped Up To 10% Over The Past 6 Months.
Yes. Me too.
When Did You Start Taking Drugs To Decrease Platelets?
Hey lovely people, hope you’re all doing great
I want to know when did you start to take drugs to lower platelets counts? How long after diagnosis and at which platelt count? What drug did u take
Also state if you have any condition other than MPN that increase your risk.
I am on anagralide and aspirin as my platelets are over 900 but i want to ask my doctor to stop the anagrelide and only stay on aspirin.
Want to know your experience.
I am 51 wit ET (CALR+) and i also have high cholesterol… read more
I was 52 when I got diagnosed with ET and my platelets were around 600. My hematologist immediately started me on hydroxyurea. I had originally been having terrible headaches before my diagnosis and… read more
I Have Post PV Myelofibrosis, After 15 Years Of PV. When I Feel Pain, It's Overwhelming. Does Anyone Have Any Information Re: Pain Meds?
i agree , PatriciaB what to think about going to pharmacy to bring a box with used needle ( self injecting interferon )😊
What Does A Negative BCR-ABL1 Mean?
Alternatives To Low Dose Aspirin For High Platelet Count.
Low dose aspirin gives me heartburn. I understand it can negatively effect my kidneys. Any thoughts?
My kidneys are OK. I just didn't want to hurt them. I've now found I can tolerate the coated version and occasionally have to take antacids. Thanks, everyone for your advice.
Besremi
My mpn specialist decided I needed besremi. Today I got the med in the mail. I'm nervous. Can anyone share their experiences and side effects with me? Any advice?
Very similar for me - no side effects at all and after 1 year my RBC are almost normal and I've had no phlebotomy for 6 months.
I Have Gained 13 Lbs. Since Taking JAKAFI. I Am A Small Woman, And This Has Caused More Abdominal Pain. Has Anyone Else Gone Through This?
Precautions While Using Hydroxyurea
I've been wondering how cognizant we are of the absolutely necessary precautions related to its use. Hydroxyurea is poisonous, you know. These are some general directions from pharmacy flyers, and I've added some cautionary suggestions from my own experience, for whatever its worth.
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Proper Use:
Wear disposable gloves when handling the bottle or medicine. (I really doubt that many do this. I also believe that the container shouldn't be stored with other medications.)
… read moreThat’s all we can do, Andrea, use due diligence with the information we get, and then try to apply it as best we can. Many people sail through without any dire effects, defying all precautions and… read more
Thank You For Any Insight On Affording OJJAARA (momelotinib)? (about $30,000 Monthly, Possible $12,000 Copay😔)
Jakafi no longer effective for Myelofibrosis
Thank you, Bob, for sharing your time to answer my question and offering Hope! Stay Safe!♥️
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