As an aside I was on Jakafi for a long time and needed a blood transfusion about once a month. My doctor switched me to inrebic the beginning of 2023 and I have not needed a transfusion since then, and I feel a lot better.

Thanks everyone. Has anyone had kidney failure and are on dialysis? I've been doing at home peritoneal dialysis 5 mths now. Myelofibrosis has taken a back seat.

I transitioned from ET in 2016. Started Jakafi 20 mg twice a day from hydroxy and felt so much better. Have done well, platelets started going down so reduced to 15mg. Platelets still low and a lot of fatigue but numbers are stable. So feel I’m doing well.

I was diagnosed late in 2019

I wasn’t diagnosed until May,2022. My Rheumatologist noticed my WBC and Platelet numbers were high. He sent me to an Oncologist. Thus begins my new disease!