how polycythemia vera can transform into myelofibrosis and myeloproliferative neoplasms | myMPNteam

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Top 10 Search Results for "how polycythemia vera can transform into myelofibrosis"

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Can PV Ever Be Cured?
A myMPNteam Member asked a question 💭
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A myMPNteam Member

The official information is that there is no cure. I could read about the odd case that went into remission, but that seems to be more the exception than the rule. Several of those cases needed bone… read more

I Read A Lot About Primary Myelofibrosis But Very Little About Secondary Myelofibrosis. What Is The Difference?
A myMPNteam Member asked a question 💭

I have secondary Myelofibrosis. I take Jakafi 10 and Anagrelide.05
Twice a day. My numbers are good.

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6 Signs Your Myelofibrosis May Be Progressing Read Article...
A myMPNteam Member

This definition is from the Cleveland Clinic:

There are two types of myelofibrosis:

Primary myelofibrosis is myelofibrosis that occurs on its own.

Secondary myelofibrosis arises secondary to other… read more

Misdiagnosis
A myMPNteam Member asked a question 💭

Please anyone can help me with an online consultation with a suggested hematologist so that i can confirm my brother's diagnosis, as two hematologists said the diagnosis is polyvythemia vera, while my current hematologist said it is prefibrotic myelofibrosis. I am so anxious.

Note: i can pay the fee of consultation to the suggested hematologist

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A myMPNteam Member

Thank you for your answers, he was good for 2 months post therapy, now again he feels fatigue, abdominal pain, pain in jaws and face, though the lab findigs are excellent. We are fron iraq, and there… read more

I Have ET With JAK2 +9.4%. What Does 9.4% Mean? Does It Give Any Indication Of My Propensity To Platelet Overproduction? And Prognosis?
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What Is a JAK2 Mutation? Read Article...
A myMPNteam Member

Thank you, Tatiana!

You are so knowledgeable. I asked my specialist at a recent appointment Whether my percent of mutated alleles that are JAK2 positive Have any correlation to the severity of my… read more

Where Can We Find Information About When To Test Our Genes Taking Besremi? Thanks
A myMPNteam Member asked a question 💭

Besremi

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A myMPNteam Member

Thanks

How Many Are On Disability Because Of Their Condition?
A myMPNteam Member asked a question 💭

I was diagnosed with Polycythemia Vera in Jan 2024.

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A myMPNteam Member

I receive disability for multiple conditions

I Am ET,MF The Test Results Showed That I Have A Mutated CARL Gene. Is There Anyone Like Me Who Is Being Treated?
A myMPNteam Member asked a question 💭

Currently I am being treated with low dose Aspirin. Other than that, there is no medication at all. If anyone has the same condition as me and is being treated, please give me more information. Thank you very much

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A myMPNteam Member

Hello BichDiem
I'm glad you're here and getting good information from Steve and others on this site. I'm also glad to here that you have an appointment this month to learn more from an expert
To… read more

Does Anyone Know - Can The Bone Marrow Cancer Move Into Breast Tissue?
A myMPNteam Member asked a question 💭
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A myMPNteam Member

As far as one can read, it cannot. MPNs (ET, PV, MF, unspecified) do not behave like solid tumour cancers that can metastasise to other organs
MPNs might be secondary to other cancers, mostly as the… read more

Do You Wear A Medical Alert ID? How Do You List Your Condition/info? What Company Have You Chosen? Any Suggestion Would Be Helpful.
A myMPNteam Member asked a question 💭

I have ET/JAK2 mutation.

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A myMPNteam Member

Yayyyy. You go, girl!!!

I Have Myelofibrosis- Diagnosed In Feb 2021. I Am Currently On Jakafi 15 Mg 2 X A Day. Previous 20mg One A Day.
A myMPNteam Member asked a question 💭

Platelets at 87,000. Enlarged spleen. I am wondering if anyone out there has Myelofibrosis and what treatment they are currently undergoing?

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A myMPNteam Member

I am early stage (2yrs.). No symptoms yet and no meds. Only had several phlebotomy. My numbers are getting in control very soon. Good luck!!