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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

I Would Like To Ask At What Level Can Platelets Get To For Treatment Other Than Aspirin Be Considered?

A myMPNteam Member asked a question 💭
Australia

I have ET & latest platelet count was 1086.. my Haematologist has commenced me on Hydrea but this has made me feel so much worse with no response in platelet count, so i have stopped taking for now & will continue on aspirin & healthy lifestyle… ?!? 😊

September 23, 2023
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A myMPNteam Member

I would start taking hydrea from 1,200,000. From that number on I would take hydrea and adjust the dose. Hydrea also prevents the disease from progressing

September 25, 2023
A myMPNteam Member

When I first started Hydrea .. which is quite recently in July … 1 x500g cap I did feel quite nauseous .. then I was recommended to take it at night time with a glass of milk before bed. This stopped the nausea and I find I tolerate it quite well now.
First blood test it hadn’t made any change to my platelets so Haem increased dose 2x 500g. Having next blood test tomorrow so🤞🏻🤞🏻
Keeping our stress levels down is important too I was told.

September 24, 2023

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