I was diagnosed just over a year ago with MPN, but I know I was quite ill with it for years before diagnosis. I see posts that include peoples' sub-diagnosis of this disease, but so far I don't have one. I'm battling rectal cancer at the same time, so the focus seems to be on that. My MPN diagnosis was precipitated by a stroke. My symptoms, thankfully, seem to be limited mostly to very, very, very severe itching. This itching cannot be predicted; it just comes on, and sometimes is so severe I'm… read more
Thanks so much! And yes, sometimes. A combination of benadryl or sudafed and icepacks seemed to help more than anything, if anybody else wants to know. It's now finally being controlled with gabapentin.
Over-the-counter Eucerin anti-itch cream helps me, but I suspect that unfortunately yours is a higher level of itch than mine.