I have been taking HU for PV for past 3 yrs. Lately my WBC and platelets have been increasing despite that. Does anyone know if supplementing with Vitamin D or C can help?
Have your vit d check before taking high dosage had min check by my doctor some yrs back was very low was put on 5000 mg once a day got it back to normal now only take once a week will have it check , in dec.He said you can be to high check with your doctor
P.S. I just read an article on this website about Vitamin D and MPN's. Sounds good except as usual the situation is complex. I didn't know that Vitamin D can cause kidney stones. My sister had emergency surgery for that a couple of years ago. But that won't stop me from taking D3, as even my internist recommended it.
That's great news, Joanne. I wonder if the decrease is due to the Vitamin D. Who knows. Hope yours stay down. Best wishes!
Hi Janice, thanks for the advice about Vitamin D. I started taking 2000 mg of Vitamin D a couple weeks ago. just had my blood work taken a couple days ago. Interestingly enough, my platelets went down 110 pts and are now in normal range - for the first time in 10 months! We need to keep sharing our experiences to help one another navigate a confusing illness. Thanks, Pat and Janice.
Thanks for that info, Pat. Am going to up my intake of vitamin D to see if my next blood work is affected