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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Do Vitamins Help For MPNs?

A myMPNteam Member asked a question 💭
Philadelphia Area, PA

I have been taking HU for PV for past 3 yrs. Lately my WBC and platelets have been increasing despite that. Does anyone know if supplementing with Vitamin D or C can help?

October 7, 2023
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A myMPNteam Member

Have your vit d check before taking high dosage had min check by my doctor some yrs back was very low was put on 5000 mg once a day got it back to normal now only take once a week will have it check , in dec.He said you can be to high check with your doctor

November 20, 2023
A myMPNteam Member

P.S. I just read an article on this website about Vitamin D and MPN's. Sounds good except as usual the situation is complex. I didn't know that Vitamin D can cause kidney stones. My sister had emergency surgery for that a couple of years ago. But that won't stop me from taking D3, as even my internist recommended it.

November 1, 2023
A myMPNteam Member

That's great news, Joanne. I wonder if the decrease is due to the Vitamin D. Who knows. Hope yours stay down. Best wishes!

November 1, 2023
A myMPNteam Member

Hi Janice, thanks for the advice about Vitamin D. I started taking 2000 mg of Vitamin D a couple weeks ago. just had my blood work taken a couple days ago. Interestingly enough, my platelets went down 110 pts and are now in normal range - for the first time in 10 months! We need to keep sharing our experiences to help one another navigate a confusing illness. Thanks, Pat and Janice.

October 31, 2023
A myMPNteam Member

Thanks for that info, Pat. Am going to up my intake of vitamin D to see if my next blood work is affected

October 12, 2023

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