My mpn specialist decided I needed besremi. Today I got the med in the mail. I'm nervous. Can anyone share their experiences and side effects with me? Any advice?
Very similar for me - no side effects at all and after 1 year my RBC are almost normal and I've had no phlebotomy for 6 months.
I have been on Besremi sine February 2022. It has been very effective and I have experienced minimal side effects. it is much easier to tolerate than hydroxyurea and therapeutic phlebotomy. The injections are very easy to do and I can barely feel them.
If you have never self-injected, it helps to get some instructions. My first time, I injected in the hematology office. One of the nurses taught me how and I was observed for 20 minutes after the first injections.
Starting on Besremi was an excellent decision for me. I feel better now that I did before starting the Besremi.
Wishing you success on this stage of your MPN journey.