Is The Meaning Of VAF 62%, The Length Of Time The PV Was Or Has Been Progressing And Harder To Get Under Control?

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A myMPNteam Member asked a question 💭

It seems as if we have the PV under control (CBC scores wise), but I feel really bad for a couple of weeks, then good for a couple and back to the drawing board with Phlebotomies, then really bad, it goes on and on. Feels like I'm starting over every few months. NOTE: only been at it 7 months.

posted April 6

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If your VAF is 62%, it can also mean you might have hereditary PV. Not always, but in younger patients, a VAF >50% at diagnosis indicates some form of hereditary MPN.
Better talk about this with a specialist.

posted April 12

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