Is this common? Help with Itching. I am taking VONJO a pacrinitib for this which helps somewhat, but not overall. Any suggestions
Pat
That was great information from Tta, thank you. I am fairly new to ET, being diagnosed a couple years ago. I have described my bone pain as aching from the insides of my bones (legs and arms) To me I kind of feel like my bones are rubbery, meaning they feel very weak with no stability. Lol I describe it as feeling like Gumby from the Gumby and Pokey show I watched as a child 😂
I have recently started to have pain in my finger joints, I’m not sure if it’s from ET, the medication or arthritis so I plan to ask my doctor about it the next time I see her.
I’m definitely going to read some of the links from Tta’s response.
Hopefully my answer helped a bit with your question.
Gwen