I was on HU for 9 years and found that I needed to be active by exercising almost every day and I’ve never had fatigue. The med also kept my platelets in the 225 to 250 range taking 700 mg per day. Only issue I really dealt with is skin cancer. Have around 12 per year with some needing MOHS surgery so not fun. Now on Besremi since Nov 27 and having no problems and platelets staying at 225. I will be 80 this year and doing great. I do hope the skin cancer will stop. My oncologist thinks it will but only time will tell. Stay as active as you can and then some…..I know it helps me. Hope all works out great for you
Richard

I haven't taken HU yet, and my platelets are quite high. Staying active is an absolute to maintain energy levels. I mostly hear about quality of life decreasing on these regimens, and appreciate your sharing your experiences.

Ruth,
I was taking a 500mg and 200 mg of HU each day.

Hi Richard,
Thanks for the info about Besremi! Sorry about your skin cancer
I am interested in anything that reduces my risk for skin cancer which I have already had numerous times prior to HU with MOHS and deep excision. HU must help most people are started on HU initially. your platelets were quite
Low. what dose of HU were were you taking?

Activity and exercise helps me a great deal too!

Ruth

I don’t know that hydrea helps symptoms such as you describe, nor is it intended to.