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So Sleepy All The Time And Muscel Aches All Over
A myMPNteam Member asked a question 💭
posted May 3
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A myMPNteam Member

Solidarity 🌷

Exhaustion is a symptom of MPNs, and so is body pain.

"Prominent symptoms include fatigue (92.7%), early satiety (61.9%), abdominal pain (45.9%), abdominal discomfort (53.2%), inactivity (60.5%), headache (48.3%), concentration problems (61.7%), dizziness (55.2%), numbness (61.3%), insomnia (65.4%), sad mood (62.7%), sexuality problems (57.9%), cough (46.4%), night sweats (56.4%), itching (52.6%), bone pain (48.5%), fever (20.2%), weight loss (34.2%), and impaired quality of life (84.2%)"
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC46...

"Fatigue in MPN is common, debilitating and distressing. It affects all aspects of health, wellbeing and life. Health professionals could affect patients' lives substantially by acknowledging and understanding fatigue in MPN, including contributing factors and potential opportunities for management. More systematic data describing the causes and management of MPN fatigue is needed."
https://onlinelibrary.wiley.com/doi/epdf/10.100...

I hope your specialist will help you with your symptoms. They often might not be well informed about these symptoms, but from time to time you can find a more compassionate doctor.

https://onlinelibrary.wiley.com/doi/epdf/10.1002/cnr2.1655
Impact of Inflammation on Myeloproliferative Neoplasm Symptom Development
Impact of Inflammation on Myeloproliferative Neoplasm Symptom Development
posted May 3
A myMPNteam Member

Good to know, but it is making me very low in mood

posted May 3
A myMPNteam Member

Me, too
You are not alone

Just got some high quality air filters to help pulmonary issues

Started Pegasys to attack the ET as aggressively as possible

Diagnosed with Asthma and Sleep Apnea not long ago

Only planning on conquering this matter at hand

Go in succeed

posted May 3

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