Is Their Anyone Out There Using The Drug OJJAARA Or MOMELOTINIB? Would Like To Talk With You. Thank You, Paul
Took Jakafi for 2 years until complications forced me to stop last year, at which time my Stanford doc insisted that I wait for Ojjaara to become available. Now, after feeling significantly better for 6 months on Ojjaara, Iām dealing with a possible side effect (UTIs) but still not sure if caused by the drug: TBD !
Hey Mary...
Is it your primary treatment or u did take other drug before it?
How z it workig
Diagnosed with myelofibrosis in 1982. No medical intervention needed until March of 2020. Began with JAKAFI 5 and went to JAKAFI 10 some time later. Was in a 6 month blind trial in spring 2022 which was not productive. Was put on VONJO for a short while after that. Did not like the side effects at all Back on JAKAFI 10 until mid February 2024 at which time I began taking OJJARA.
So far, other than controllable intermittent diarrhea, it has worked out really well. My white count is holding better and so is my hemoglobin. I also was getting PROCRIT shots throughout 2023 to try to help me sustain an acceptable hemoglobin count. It did not help and cumulatively was causing unwanted side effects. I am one of those patients that does all I can to control illness with natural or homeopathic means. Please let me know if I can help with info
Any One Familiar With Procrit Or Jakafi? Good, Bad Or So So?
Anybody Taking Ojaar- Momelotinib? Do You Have Side Effects?
Has Anyone With MF Been Offered The New Drug Approved This Month, Momelotinib Or Spoken To Their Provider About It?