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Hi All. I Have ET, Diagnosed 2 Yrs Ago. So Far Up Until 3 Weeks Ago No Symptoms. Now I’ve Been Having Intermittent Periods Of Lightheadednes

A myMPNteam Member asked a question 💭
Plymouth Meeting, PA
July 21, 2024
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Answer Summary

Members responded to someone experiencing new lightheadedness with ET by sharing practical strategies and cautionary experiences, with the... Read more

Members responded to someone experiencing new lightheadedness with ET by sharing practical strategies and cautionary experiences, with the most common advice being to significantly increase daily water intake to at least 64 ounces, as dehydration and heat can trigger symptoms. Several members recommended electrolyte supplementation through powdered options like Re-Lyte rather than artificial sports drinks, with one member crediting electrolytes as life-changing for their energy and symptoms, while others emphasized that Pegasys Interferon helped them feel normal again and lower platelet counts. A recurring theme was the importance of taking new symptoms seriously and seeing a doctor promptly, as one member shared that similar lightheadedness and shortness of breath turned out to be a serious blood clot requiring immediate medical attention.

A myMPNteam Member

Gatorade is a bottle of artificial garbage. Go on Amazon and buy powdered electrolytes w/o anything artificial.
I had a grocery list of symptoms until I changed my diet and switched to Interferon.

July 22, 2024
A myMPNteam Member

I drink more than 64 oz. of water daily which has helped my platelet count. Also, being on Pegasys has helped in lowering my platelets count and feeling normal again!

July 21, 2024
A myMPNteam Member

I highly recommend Pegasys Interferon. It has personally shown to make me, and others, to feel normal again.

July 21, 2024
A myMPNteam Member

Hi Jim, I have ET too (9 years), and about two months ago felt intermittently lightheaded, short of breath, and then had a cramping calf in one leg. Turned out to be a blood clot (deep vein thrombosis and pulmonary embolism). So maybe see a doctor.

July 24, 2024
A myMPNteam Member

I didn’t know they made powdered electrolytes! I’ll order it - thanks, Nick. I don’t even like the taste of Gatorade / Powerade.

I’m so happy we have knowledgeable people in our group.

July 22, 2024

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