Thank you for your answers! Unfortunately, I have not gotten into an MPN specialist yet. My numbers are in the millions so we have all been brain storming ways to get them down quickly. I was hoping since I have so many it would bless someone else! I definitely would not want to bring harm.

Dear Patty2,

You cannot give the gene mutation causing your MPN via blood donations.
If you were to donate bone marrow, that would be a different story, but you would be thoroughly screened before, so that would not happen anyway.
You are very thoughtful about other people's safety. That matters.

Hugs,
Tatiana

I agree with Patty2.
You should never donate organs, blood or platelets if you have any sort of chronic illness. Even more so if you have MPNs.
People with MPNs not only have more platelets than the average, but their platelets can be dysfunctional, hyperactive, misshapen, etc. This can end up harming the vulnerable person who will receive the platelets.
I wish specialist doctors would tell us when they diagnose us, rather than finding out from support groups or websites from patient associations.
Regarding platelet apheresis, this is something that is used in acute situations, when the high number of platelets are putting the life of the patient in danger. Especially when hemoglobin is also high. It is not a common treatment outside acute situations, from what I could read.

I asked if I could donate anything, even after a transplant and was told NO.

I was also told absolutely not.