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My son was diagnosed with ET yesterday. My husband has PV. Anyone else have a child along with yourself with blood cancer.
Dr told our son that it was a blood disease and not cancer. Anyone else have this experience?
Hello, Cluebbers. When I was first diagnosed with PV, I was told it was a blood I discovered it myself when I noticed I had small abnormal red cells -blast on my lab tests. I'm so sorry your son has this. I told my adult sons to let their PCP's know about my Post PV Myelofibrosis.
What’s the best way to share you have an MPN? Cancer is a terrifying proposition
I’m not sure if this is correct but I’m reading more patients dx with Polycythemiavera than of ET ? Does that mean ET is progressing?
Will ET ultimately always progress to PV.
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