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I was diagnosed last yr after almost passing out with a chainsaw in hand. I’m on hydroxy 500 mg daily. I also have chronic back pain and sorts don’t doesn’t help. My body always hurts,showers suck cause I itch like crazy. Everything I do wears me out and I hurt all to hell. There’s so many other things and it can be overwhelming. I was a construction worker for 24 yrs and now can’t even open a garage door without throwing out my back.
I believe that accepting what we can’t change, doing our part to stay otherwise healthy and keep our MPN stable, stay as active as possible and be grateful for what is good in our lives are key to coping. These don’t keep away the difficult times of flareups and transitions, but doing our best to go with the flow is very helpful. All the best to you.
I try to enjoy little pleasures each day—whether they be playing with my only grandson or tending to my garden or hugging my small pup who lost his sister two weeks ago! Try to find something positive in your life and be truly grateful 💕
Living with MPNs can be mentally and physically exhausting, especially when dealing with symptoms like pain, fatigue, and itching. It's completely normal and valid to feel overwhelmed by these changes, particularly when they affect your ability to do things you used to do easily.
Many people with MPNs experience higher rates Show Full Answer
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