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A myMPNteam Member asked a question 💭
Toronto, ON canada

I’ve been on hydroxyurea for three years with no side effects and platelets well under control at about 400. I take 500 mg five days a week.( I’m 82)
Recently, I feel I have serious neuropathy in my legs and feet… a lot of tingling and burning…

I’m wondering how common this connection might be.?
I hesitate to ask for a different medication because I’ve adapted so well to hydroxy; however, I certainly wouldn’t want the neuropathy to get worse.
Appreciate any information.

September 14, 2025
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Reactions
A myMPNteam Member

It does help to keep moving.

September 18, 2025
A myMPNteam Member

I had the neuropathy before I was diagnosed. My feet were numb and hands and arms were tingly. I found acupuncture was helpful to relieve symptoms. Also massage of the lower legs and feet provided a lot of relief. I think my problem was mainly due to poor circulation. As I sit here now, my feet and hands feel almost normal, but the neuropathy will flare up, especially after a lot of exercise.

September 14, 2025
A myMPNteam Member

Which herbs?

October 6, 2025
A myMPNteam Member

Acupuncture and Chinese herbs have been really helpful for me. Lowered blood pressure within weeks

October 5, 2025
A myMPNteam Member

I have also found acupuncture to help and massage of the lower leg. I think some of the numbness I feel is due to poor circulation. Acupuncture, activity and massage really seem to help.

October 5, 2025

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