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I experienced sudden vision changes in one eye 9 months ago. Just diagnosed MPN, has treatment helped anyone reverse a vision condition ?

A myMPNteam Member asked a question 💭
Portland, OR
March 11
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Reactions
A myMPNteam Member

@A myMPNteam Member I had to have a cornea transplant on my right eye 18 months ago. I have been followed closely by a very proficient ophthalmologist for years, mostly for advancing dry eye syndrome, have had PV for seven years, with increased symptoms. Guess no one knows if there is any correlation with an MPN and age-related findings; the doctor will only say, "Who knows?" Entirely understandable because MPNs are incurable and poorly understood, and our treatment is weighed most heavily on the USUAL symptoms and lab results. When something like vision issues are added to the mix, your guess is as good as mine, OR your doctor who cannot offer a cause either.

3 hours ago
A myMPNteam Member

Yes, I do hope you saw someone about the vision changes. When I had these suddenly, I actually had had a small stroke on my brain stem.

March 12
A myMPNteam Member

Have you seen someone about if you have, have you discussed treatment options?

March 11
myMPNteam

Can MPN treatment help reverse vision changes that occurred before diagnosis?

Vision changes from MPNs can sometimes improve with treatment, though outcomes vary. When vision problems stem from blood-related issues like high platelet counts or circulation problems, treating the underlying MPN may help manage these Show Full Answer

Can MPN treatment help reverse vision changes that occurred before diagnosis?

Vision changes from MPNs can sometimes improve with treatment, though outcomes vary. When vision problems stem from blood-related issues like high platelet counts or circulation problems, treating the underlying MPN may help manage these symptoms.

The goal of MPN treatments is to restore normal blood conditions, which can help address vision issues caused by blocked blood vessels or poor circulation to the eyes. Some vision symptoms, like blurred vision or dimming, can be short-lasting and may disappear when blood levels are corrected through treatment.

However, it's important to know that high platelet counts blocking arteries and veins can sometimes cause irreversible vision loss. The extent of recovery depends on factors like:

* How long the vision changes have been present
* The severity of blood vessel damage
* Your specific MPN type and blood counts
* How quickly treatment begins

Treatment options that may help include:

Phlebotomy - Removes blood to quickly reduce red blood cell counts, particularly for polycythemia vera

Chemotherapy - Controls platelet numbers in the bloodstream

Since your vision changes occurred 9 months ago, it's crucial to discuss this with both your MPN specialist and an eye doctor. They can evaluate whether the damage is reversible and create a treatment plan tailored to your situation.

March 11

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