Having a history of PV and struggling to raise vitamin D levels, even with high-dose supplements, is a real concern worth taking seriously. A vitamin D level under 4 is extremely low, and this is something that needs urgent attention from a doctor or specialist.
Vitamin D deficiency is actually quite common in people with Show Full Answer
Having a history of PV and struggling to raise vitamin D levels, even with high-dose supplements, is a real concern worth taking seriously. A vitamin D level under 4 is extremely low, and this is something that needs urgent attention from a doctor or specialist.
Vitamin D deficiency is actually quite common in people with PV and MPNs. Research suggests that up to two-thirds of people with PV may have a deficiency. There's also a possible link between the JAK2 mutation and lower vitamin D levels. Other myMPNteam members have shared similar frustrations with stubborn vitamin D levels that just won't budge despite supplementation — so this experience is not uncommon in the community.
A few things worth discussing with a doctor include:
- Absorption issues — certain factors can affect how well the body absorbs vitamin D
- Form of supplement — vitamin D3 is generally better absorbed than D2
- Dosage and frequency — a doctor may recommend a prescription-strength dose
- Underlying causes — there may be other factors contributing to the deficiency
Please don't wait on this one — a level that low warrants a prompt conversation with a healthcare provider.
May 2
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