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MPN

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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Does Anyone Have Ringing In Their Ears Intermittently With PV?

Does Anyone Have Ringing In Their Ears Intermittently With PV?

Diagnosed just in May 2020 with PV. All my counts, Hematcrit, WBC's & Platelets are in good range. Recently developed intermittently ringing in my ears. Anyone else have this & is there any treatment for it you've found?

A myMPNteam Member said:

Interesting replies from everyone. Thanks. Very interesting about more with it now since the vaccine--esp. since the webinar I was on about MPN'S said its caused by very small blood clots in the… read more

posted 9 months ago

Ocular Migraines

Ocular Migraines

I’m new to the site and just received positive JAK2 mutation results - discovered via a high platelet count at my regular annual physical. I’m in my mid-60s, in excellent health other than high platelet levels (800s), and all other blood levels and markers are normal and I had no symptoms. My hematologist suspects ET, but I will meet with him next week for confirmation & a full consultation and review of treatment options. The only other remarkable issue I’ve had over the past few years are… read more

A myMPNteam Member said:

Yes used to get those all the time and then also thumping headaches

posted 9 days ago

How Does Having MPN Change Your Quality Of Life?

How Does Having MPN Change Your Quality Of Life?

A myMPNteam Member said:

I wouldnt say in a Bad way, Just different. You have to change sometimes how you do things. Try Not to get too frustrated.

posted 23 days ago

Brain Fog

Brain Fog

I started noticing issues with brain fog about 2 years before my MPN diagnosis. Went to a neurologist for a full work up. They said it was stress. Now I know differently since I got the MPN diagnosis last year. Multitasking is impossible. I've flooded rooms in my house TWICE forgetting to turn off the faucet. Today I had to hang up my car keys because I got out of my car without putting it in Park. Thank God it was in my driveway and I could jump in and break. So I don't trust myself behind the… read more

A myMPNteam Member said:

I have problems with dizziness and vertigo periodically. Of course, everything that comes up now I blame on the PV. It may be age. It may be caused by a virus. However, it comes and goes maybe with my… read more

posted about 2 months ago
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