I’m new to the site and just received positive JAK2 mutation results - discovered via a high platelet count at my regular annual physical. I’m in my mid-60s, in excellent health other than high platelet levels (800s), and all other blood levels and markers are normal and I had no symptoms. My hematologist suspects ET, but I will meet with him next week for confirmation & a full consultation and review of treatment options. The only other remarkable issue I’ve had over the past few years are… read more
Welcome to this site. I was diagnosed with ET 5 years ago and have been on a variety of Hydrea dosage. I have headaches and fatigue, but no ocular headaches.
Diagnosed just in May 2020 with PV. All my counts, Hematcrit, WBC's & Platelets are in good range. Recently developed intermittently ringing in my ears. Anyone else have this & is there any treatment for it you've found?
Yes, I have had and do have ringing in my ears; however, the ringing predates the diagnosis of PV. I try to ignore as much as possible.
Mine came from Norway and Germany
I would really suggest that your husband bring that up with his doctor. There are so many drugs, and even supplements we think are harmless, that may have adverse reactions with the MPN treatment and… read more
Is a baseline bone marrow biopsy standard in the diagnosing of a MPN or for monitoring it?
Bone Marrow biopsy is the Only way to accurately diagnose PMF and the level. I am ET, but had some minimal scaring in marrow. Scarring can eventually lead to a complete inability of marrow to… read more
Hi Linda4, cancer has many causes. As an engineer i suspect that the amount of electromagnetic radiation from an electric blanket is not particularly impressive compared to all the other sources… read more
Jw62 yes I am the same way. If not used wake up with headache, brain fog, fatigue.
I hesitate to say this but I drink one energy drink in the a.m. as it is a kick start, plus a good multiple vitamin. I try to get 7 hours of sleep per night. I walk 10000 steps per day and I try to… read more
Yes! Cute dog, Judy! What is his/her name?
Going on two weeks with very sore roof of the mouth. Still shook for a week. I know it was from the vaccine as the prior vaccines made me very I’ll. Doctor gave me Mary’s Magic Potion for the mouth… read more