Is a baseline bone marrow biopsy standard in the diagnosing of a MPN or for monitoring it?
I had my first one in 2008 to diagnose ET. My second one is in 2019 when I was diagnosed with MF. I’ve had 3 more since.
I’m new to the site and just received positive JAK2 mutation results - discovered via a high platelet count at my regular annual physical. I’m in my mid-60s, in excellent health other than high platelet levels (800s), and all other blood levels and markers are normal and I had no symptoms. My hematologist suspects ET, but I will meet with him next week for confirmation & a full consultation and review of treatment options. The only other remarkable issue I’ve had over the past few years are… read more
Diagnosed just in May 2020 with PV. All my counts, Hematcrit, WBC's & Platelets are in good range. Recently developed intermittently ringing in my ears. Anyone else have this & is there any treatment for it you've found?
yes, I have had it for some time and its is worse now. Hearing Aids help
Does anyone take Hydorxueria before bedtime? I was taking it once a day in the morning & a few months ago started taking 2 times a day--AM & PM. Have developed dreaming every night--wondering if related to the Hydroxy.
I have PV and am JAK2 positive. I was diagnosed two years ago and have been taking 1500mg Hydrea/per day for almost a year. It has been keeping by blood work and symptoms under control. I am under 60 and have concerns about staying on Hydrea long term. I just had a telemedicine appointment with a doctor at Johns Hopkins who also expressed concern about the long term use of this medication, particularly for me since I am also BRAC2 positive. We discussed two other options such as Jakafi or… read more