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I had two Pfizer vaccine shots in the spring of 2021, a booster in Nov. of 2021 - and then actually had a very mild case of Covid this past summer (2022). I get a flu shot every fall and I’m in general good health so am not sure I need another Covid booster at this point. So I’m curious what others are doing.
Nope never had the first one as was still trying ti determine what was wrong . Then the clots started on people with shots already had clots
I'm like 7up never had it never will its gene therapy not… read more
Going on two weeks with very sore roof of the mouth. Still shook for a week. I know it was from the vaccine as the prior vaccines made me very I’ll. Doctor gave me Mary’s Magic Potion for the mouth… read more
Ilike to walk 10.000 steps a day or exercise whith video at home.
The reason I am curious is the fact that my bmb procedure was the smoothest of the two that I have had. The first one resulted in my being hospitalized for a week with sepsis and the search for beginning osteomyelitis. Therefore, I was uncomfortable with the thought of having another one, now 4-1/2 years later. As I said, I had the procedure on 7/25/23, felt good other than minor soreness for a couple of days. Then, about a week ago, I suddenly began to have rather severe pain in the upper iliac… read more
Hi Mark, thanks very much for the alert. I will mention that to my doctor and ask if there is a better alternative. I’m sort of at a loss for anything allowable for my ongoing cervical pain while they… read more
Intermittent burning, painful skin of lower extremities known as erythromelalgia. This was so bad the year after my PV was diagnosed that it felt like rough sandpaper was being rubbed over my legs… read more
I would also like to add to this
Advocate for yourself! Educate yourself on your diagnosis so that you can ask the right questions to your doctor
Also tell your doctor everything about how you are… read more
Have you noticed any differences when taking them or missing a dose?
I am not sure what year this message was posted. I spread my vitamins and supplements over all meals.
I have PV, having fortnightly phlebotomy's and are taking 1000mg hydroxyurea daily. I have been taking HU for 3 weeks now, but my hematocrit levels are still at 61%. How long would you expect it to take to start decreasing your levels? I guess it is a bit of an open ended question, but what have others experienced out there, to give me an idea. Much appreciated.
Thanks for sharing your experience Janice! I learned a lot and agree with you
Ruth
For me cold works very good. It is the best antiinflamatory thing we have to have. It is easier and free.
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