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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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Bone Pain? Found A Solution That Works For Me.
A myMPNteam Member asked a question 💭

The last time I went to MD Anderson, a little over a month ago, I complained about bone pain. Bone pain is different than muscle pain and nothing over the counter seemed to work at all. I was not interested in narcotics, just a little relief. My doctor told me to try Claritin or the generic version of it. Took about a week but the pain is very much improved, almost gone. I take one every morning. Maybe this help help someone else.

posted January 28
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What Are Side Effects Of Taking Hydroxyurea For 30 Years?
A myMPNteam Member asked a question 💭
posted January 28
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Is There Anyone In Northamptonshire Please?
A myMPNteam Member asked a question 💭

Hi everyone
This is my first post on here. I hope you don’t mind me adding you to my MPNteam. Looking forward to hearing from others with a MPN especially those local to Northampton.

posted March 16
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Can People Who Take Aspirin Also Take A Tylenol For Pain? Or A Half Of A Tylenol 500?
A myMPNteam Member asked a question 💭

I have PV high platelets and high HCT at the moment and I’m in a lot of pain and I need to take something. My doctor did say it was all right but I just wondered if it’s OK to take with aspirin or if anyone else does. Thank you.

posted March 4
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ET And Interferon
A myMPNteam Member asked a question 💭

Anyone that has been on hydroxyures that had to switch to interferon have any bad side effects?
I have been told I may have to switch for my ET treatment and am wondering what side effects should I expect?
Thanks

posted February 26
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Does ANYBODY Know Anything About Schwannomatosis NF3, Have ANY Personal Experiences With The Condition?
A myMPNteam Member asked a question 💭

I have had the condition since 1970, finally diagnosed with it in 2017, rather than Neurofibromatosis NF2 which I was wrongly diagnosed in 2006, I have had three surgical removals to remove schwannomas in 1970, 1997 and 2012, I have NEVER met anybody with the condition EVER, or been in contact with someone who had this particular plight?

posted February 18
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Is It Correct That Someone With An Autoimmune Disorder Can't Take An Interferon Drug?
A myMPNteam Member asked a question 💭
posted February 18
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Has Anyone Taking Jakafi Had Their Numbers Come Down Enough So As To Lower The Dosage? Did A Lower Dose Lessen The Side Effects?
A myMPNteam Member asked a question 💭

My husband, 4-5 months on Jakafi, is frustrated with the side effects. We thought he would adjust but that hasn’t happened. His numbers have come down to normal range, even below normal on the HCT. He thinks his Jakafi dose needs adjustment. He’s currently on 20mg twice a day. Has anyone lowered their dose and had fewer side effects as a result?

posted February 10
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How Do I Sign Out Of This Site?
A myMPNteam Member asked a question 💭
posted February 9
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What Does Hemolyzing Mean?
A myMPNteam Member asked a question 💭
posted January 28
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