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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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I Googled (What Drinks Lower Blood Platelets ?)

I Googled (What Drinks Lower Blood Platelets ?)

And the answer is:
Things that can lower your platelet count include:

quinine, which is found in tonic water.
alcohol.
cranberry juice.
cow's milk.
tahini.
That's why I always have a nice cold beer or two after a sweaty day volunteering with Habitat for Humanity. LOL. Doctors will tell you no alcohol. I say live and enjoy your life.

Clinical Trial For MF

Clinical Trial For MF

Hi. My name is Denise and my 80 year old mom has Myelofibrosis. She has has had many ups and downs with the experience of her disease, but over the last year she has had a remarkable quality of life while on Jakafi and prednisone. Currently, her transfusions are occurring more frequently about every 30-40 days. Her oncologist is recommending she consider a clinical trial called Itacitinib. I would love to be able to talk with others who may have any experience with this trial?

Superficial Phlebitis

Superficial Phlebitis

I was wondering if any of you experience superficial phlebitis? I was diagnosed with PV in June 2020. However, one of my first clues something was wrong is that I had a couple of bouts of phlebitis in my feet a year before diagnosed. Also, some micro-clots in the last joint of a couple of fingers. The doctors didn’t think anything was wrong. I have continued to have phlebitis in feet and ankles periodically. The doctors don’t seemed worried as long as not a DVT, but they are painful. Finally, I… read more

A myMPNteam Member said:

I do periodically. I have a painful lump in my left forearm at the moment. If I have one when in to see the MD I’ll complain, but nothing has come of those thus far.

posted about 2 months ago

Issues With Zyrtec - Increase In White Cell Count - Vein Issues

Issues With Zyrtec - Increase In White Cell Count - Vein Issues

I am recently having a lot of side effects from Zyrtec, nausea, headache and extreme tiredness. I though for some time I was developing new symptoms from the PV and Hydroxyurea, and recently realized that if I don't take any Zyrtec I don't have those issues
My HCT a week ago was the highest its ever been at 49.5 , surprise to me as I didn't have the usual warning signs. I didn't see the Dr. just a treatment. They had trouble with my veins this time, and somewhat the last time in March.… read more

A myMPNteam Member said:

I didn’t tolerate Zyrtec well. Made me r way too dizzy. Try other antihistamines. The only one I could tolerate while taking HU was Claritin 10 extended relief, and Benadryl <— and b. will make you… read more

posted about 1 month ago

Husband Is Having Daily Headaches As A Result Of His PV. Is Effecting His Quality Of Life.

Husband Is Having Daily Headaches As A Result Of His PV. Is Effecting His Quality Of Life.

Most mornings husband wakes up to a strong headache. Tries to knock it out with tylenol but that hasn't been doing the trick lately. How does everyone else handle or treat their headaches and have you found a trigger such as a food that makes your headache
more frequent or severe? Has anyone tried CBD pills for their pain? thank you

A myMPNteam Member said:

My headaches are caused by not getting enough oxygen when I sleep. My Oncologist sent me for a sleep test and I have sleep apnea. Having oxygen at night has helped with the headaches.

posted about 2 months ago

Toe Swelling

Toe Swelling

Hi, My big toe on my right foot has been swollen, red, and tender for about 6 weeks now. Has anyone experienced this type of symptom?/? Thank you, Annette

A myMPNteam Member said:

Had the same issue 2 Pediatrics and one female orthopedic foot doctor all missed what the problem was Even my GP missed . I have a new doctor because my GP left The practice is when they discover I… read more

posted 3 months ago
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