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Real members of myMPNteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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LDH Levels

LDH Levels

Went to oncologist appt today. Platelets have lowered to 751. Dr. prescribed hydroxyurea 3 times weekly. Concerned with my LDH level that has risen to 449. Has anyone else LDH level been a concern or even discussed?

Are There Others Who Have Been Diagnosed With PMF Before 50?

Are There Others Who Have Been Diagnosed With PMF Before 50?

I was diagnosed with PMF at 45 which is my the median age for this disease.

A myMPNteam Member said:

I was diagnosed at age 77 and now 78. Doing ok. I have some ups and downs. But living my life with PMF. You can do it!
Hugs
Judy

posted 2 months ago

Has Anyone Diagnosed With PMF Had High Hemoglobin And Hematocrit Values In Addition To High White Blood Cell Count?

Has Anyone Diagnosed With PMF Had High Hemoglobin And Hematocrit Values In Addition To High White Blood Cell Count?

A myMPNteam Member said:

I am post PV MF and my HGB has dropped significantly and I've had two transfusions and iron infusion in 8 weeks. My WBC's are always high and HCT within normal limits. I'm taking Jackifi.

posted 24 days ago

Osteoporosis With MPN’s

Osteoporosis With MPN’s

I have osteoporosis, having PV, and ET too... I also are positive for having the JAK2 mutation.. Can I take PROLIA, recommend by my GP ??

A myMPNteam Member said:

I have MF and take prolia. Both prescribed by my oncologist

posted about 2 months ago

I Am A Man Recently Diagnosed With ET, February Last Year. Is This Condition Something That I Was Born With?

I Am A Man Recently Diagnosed With ET, February Last Year. Is This Condition Something That I Was Born With?

A myMPNteam Member said:

This is a question for your MD. I'm told my PV is caused by a spontaneous gene mutation. You may want to peruse some of the medical articles on this website for more info.

posted about 1 month ago

How Do We Handle Covid 19? Hibernate At Christmas?

How Do We Handle Covid 19? Hibernate At Christmas?

I'm worried about my family coming home for Christmas from 4 different states. Should I cancel Christmas? I know they'd be careful, but with PV can I be around other people at all?

A myMPNteam Member said:

Yes, just went today( because I ask my Doctor) for an ultrasound. Make sure you push to have it!! Because we know our bodies and mine came back enlarged. I’ve had those symptoms for years and was… read more

posted 6 months ago
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