LDH Levels

Went to oncologist appt today. Platelets have lowered to 751. Dr. prescribed hydroxyurea 3 times weekly. Concerned with my LDH level that has risen to 449. Has anyone else LDH level been a concern or even discussed?

posted 24 days ago

hug useful? answer

When Was ET (MPN) Discovered & Diagnosed As A Blood Cancer?

posted 3 months ago

hug useful? answer

When Was ET (MPN) Discovered & Diagnosed As A Blood Cancer?

posted 3 months ago

hug useful? answer

Are There Others Who Have Been Diagnosed With PMF Before 50?

I was diagnosed with PMF at 45 which is my the median age for this disease.

posted 3 months ago

hug useful? answer (1)

I was diagnosed at age 77 and now 78. Doing ok. I have some ups and downs. But living my life with PMF. You can do it!
Hugs
Judy

posted 2 months ago

hug useful?

Has Anyone Diagnosed With PMF Had High Hemoglobin And Hematocrit Values In Addition To High White Blood Cell Count?

posted 4 months ago

hug useful? answer (1)

I am post PV MF and my HGB has dropped significantly and I've had two transfusions and iron infusion in 8 weeks. My WBC's are always high and HCT within normal limits. I'm taking Jackifi.

posted 24 days ago

hug useful?

Osteoporosis With MPN’s

I have osteoporosis, having PV, and ET too... I also are positive for having the JAK2 mutation.. Can I take PROLIA, recommend by my GP ??

posted 4 months ago

hug useful? answer (1)

I have MF and take prolia. Both prescribed by my oncologist

posted about 2 months ago

hug useful?

I Am A Man Recently Diagnosed With ET, February Last Year. Is This Condition Something That I Was Born With?

posted 5 months ago

hug (1) useful? answer (1)

This is a question for your MD. I'm told my PV is caused by a spontaneous gene mutation. You may want to peruse some of the medical articles on this website for more info.

posted about 1 month ago

hug useful?

How Do We Handle Covid 19? Hibernate At Christmas?

I'm worried about my family coming home for Christmas from 4 different states. Should I cancel Christmas? I know they'd be careful, but with PV can I be around other people at all?

posted 11 months ago

hug useful? answer (2)

sign up to view previous answers 1 of 2

Yes, just went today( because I ask my Doctor) for an ultrasound. Make sure you push to have it!! Because we know our bodies and mine came back enlarged. I’ve had those symptoms for years and was… read more

posted 6 months ago

hug useful?

I Put My Home Area Down As Central Texas. It's Austin. It Says "Centralia, TX" On My Profile. How Do I Change It?

posted over 1 year ago

hug (1) useful? answer (2)

sign up to view previous answers 1 of 2

Thank you so much!!! Great directions!

posted over 1 year ago

hug (1) useful? (1)

I Was Diagnosed With PV And ET With JAK2 Mutation In March Of This Year. I’m Trying To Eat Clean. Should Diet Coke Be Eliminated?

posted 4 months ago

hug useful? answer (3)

sign up to view previous answers 1 of 3

Good to know!

posted 11 days ago

hug useful?

Connect with others who understand.

MPN

Questions + Answers

LDH Levels

LDH Levels

When Was ET (MPN) Discovered & Diagnosed As A Blood Cancer?

When Was ET (MPN) Discovered & Diagnosed As A Blood Cancer?

When Was ET (MPN) Discovered & Diagnosed As A Blood Cancer?

When Was ET (MPN) Discovered & Diagnosed As A Blood Cancer?

Are There Others Who Have Been Diagnosed With PMF Before 50?

Are There Others Who Have Been Diagnosed With PMF Before 50?

Has Anyone Diagnosed With PMF Had High Hemoglobin And Hematocrit Values In Addition To High White Blood Cell Count?

Has Anyone Diagnosed With PMF Had High Hemoglobin And Hematocrit Values In Addition To High White Blood Cell Count?

Osteoporosis With MPN’s

Osteoporosis With MPN’s

I Am A Man Recently Diagnosed With ET, February Last Year. Is This Condition Something That I Was Born With?

I Am A Man Recently Diagnosed With ET, February Last Year. Is This Condition Something That I Was Born With?

How Do We Handle Covid 19? Hibernate At Christmas?

How Do We Handle Covid 19? Hibernate At Christmas?

I Put My Home Area Down As Central Texas. It's Austin. It Says "Centralia, TX" On My Profile. How Do I Change It?

I Put My Home Area Down As Central Texas. It's Austin. It Says "Centralia, TX" On My Profile. How Do I Change It?

I Was Diagnosed With PV And ET With JAK2 Mutation In March Of This Year. I’m Trying To Eat Clean. Should Diet Coke Be Eliminated?

I Was Diagnosed With PV And ET With JAK2 Mutation In March Of This Year. I’m Trying To Eat Clean. Should Diet Coke Be Eliminated?

Join today!

Start meeting others who understand

Thank you for signing up.