Bone Pain? Found A Solution That Works For Me. | myMPNteam

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Bone Pain? Found A Solution That Works For Me.
A myMPNteam Member asked a question 💭

The last time I went to MD Anderson, a little over a month ago, I complained about bone pain. Bone pain is different than muscle pain and nothing over the counter seemed to work at all. I was not interested in narcotics, just a little relief. My doctor told me to try Claritin or the generic version of it. Took about a week but the pain is very much improved, almost gone. I take one every morning. Maybe this help help someone else.

Has Anyone Else Got Cochlear Hydrops (also Known As Endolymphatic Hydrops)?
A myMPNteam Member asked a question 💭

Not sure if it’s related to my ET in any way but curious to see if other people suffer from it indicating there could be a correlation. It’s water in the inner ear causing loss of hearing and tinnitus.

My Platelets Are Between (Phone Number Can Only Be Seen By myMPNteam Users) Is It Ok To Fly? Thanks In Advance
A myMPNteam Member asked a question 💭
What Are Side Effects Of Taking Hydroxyurea For 30 Years?
A myMPNteam Member asked a question 💭
N- Acetylcysteine Experiences In MPN?
A myMPNteam Member asked a question 💭

My question: Are there any MPNérs who have already had experience with N-acetylcysteine? What dosage do you use and what are the effects on your MPN? I saw that it also requires some caution in addition to aspirine... what is known about this?

My Husband Has Primary Polycythemia Vera (diagnosed In 2021). His Fatigue Has Been Increasing...........
A myMPNteam Member asked a question 💭

Is there anyone else with PPV that has fatigue?

Sincerely,

Lisa

Has Anyone Who’s Been Diagnosed With ET And Jak2 Positive Tried Lowering Platelets With Supplements Such As Resveratrol?
A myMPNteam Member asked a question 💭
Is It Just Me Or Am I Seeing That Most Of Us Had An Injury Or Some Sort Of Trauma That Triggered Our Illnesses?
A myMPNteam Member asked a question 💭
Hydroxyurea Vs. Jakafi
A myMPNteam Member asked a question 💭

I'd like to know if anyone who switched from Hydroxyurea to Jakafi were happy or regretted their decision.

Is There A Difference Between Chewable Baby Aspirin And Regular Baby Aspirin?
A myMPNteam Member asked a question 💭

Sometimes use chewable aspirin if I run out.

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